Evidence map›Paper›PMID 38390977›Full record

ArticleInternational journal of neonatal screening2024

Stakeholder Views of the Proposed Introduction of Next Generation Sequencing into the Cystic Fibrosis Screening Protocol in England.

Pru Holder, Corinna C Clark, Louise Moody, Felicity K Boardman, Jacqui Cowlard, Lorna Allen, Claire Walter, James R Bonham, Jane Chudleigh

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in International journal of neonatal screening, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Pru HolderFlorence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King's College London, London SE5 9PJ, UK.ORCID 0000-0002-1036-978X
Corinna C ClarkWarwick Medical School, Warwick University, Coventry CV4 7AL, UK.ORCID 0000-0002-1077-9383
Louise MoodyCentre for Arts, Memory and Communities, Coventry University, Coventry CV1 5FB, UK.ORCID 0000-0003-2326-4124
Felicity K BoardmanWarwick Medical School, Warwick University, Coventry CV4 7AL, UK.ORCID 0000-0002-3268-6276
Jacqui CowlardPaediatric Respiratory Medicine, Royal London Children's Hospital, London E1 1FR, UK.
Lorna AllenCystic Fibrosis Trust, London EC3N 1RE, UK.
Claire WalterCystic Fibrosis Trust, London EC3N 1RE, UK.
James R BonhamPharmacy, Diagnostics and Genetics, Sheffield Children's NHS Foundation Trust, Sheffield S10 2TH, UK.ORCID 0009-0004-9485-6754
Jane ChudleighFlorence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King's College London, London SE5 9PJ, UK.ORCID 0000-0002-7334-8708

Funding

NHS England/ Department of Health and Social Care CFNGS
6 · The paper itself

Abstract

The project aimed to gather, analyse, and compare the views of stakeholders about the proposed UK cystic fibrosis (CF) screening protocol incorporating next generation sequencing (NGS). The study design was based on principles of Q-methodology with a willingness-to-pay exercise. Participants were recruited from 12 CF centres in the UK. The study contained twenty-eight adults who have experience with CF (parents of children with CF (

Indexed as

CRMS/CFSPIDcystic fibrosisgenomicsnext generation sequencing

Identifiers

PMID38390977
PMCPMC10885054

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.