Evidence map›Paper›PMID 38390681›Full record

ArticleThe Hastings Center report2024

Identity Theft, Deep Brain Stimulation, and the Primacy of Post-trial Obligations.

Joseph J Fins, Amanda R Merner, Megan S Wright, Gabriel Lázaro-Muñoz

Abstract read
In one paragraph

Article in The Hastings Center report, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
  5. Review
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Joseph J Fins
Amanda R Merner
Megan S Wright
Gabriel Lázaro-Muñoz

Funding

Central thalamic stimulation for traumatic brain injuryUH3NS095554 · NINDS · WEILL MEDICAL COLL OF CORNELL UNIV · PI BUTSON, CHRISTOPHER R, GIACINO, JOSEPH THOMAS · 2015 to 2021
$6.9M
Neuroethics of aDBS Systems Targeting Neuropsychiatric and Movement DisordersR01MH114854 · NIMH · BAYLOR COLLEGE OF MEDICINE · PI GOODMAN, WAYNE K, LAZARO-MUNOZ, GABRIEL · 2017 to 2020
$2.1M
Post-trial Access, Clinical Care, Psychosocial Support, and Scientific Progress in Experimental Deep Brain Stimulation ResearchR01MH133657 · NIMH · MASSACHUSETTS GENERAL HOSPITAL · PI Joseph J. Fins, Gabriel Lazaro-Munoz · 2023 to 2026
$1.9M
Cognitive Restoration: Neuroethics and Disability RightsRF1MH121378 · NIMH · WEILL MEDICAL COLL OF CORNELL UNIV · PI FINS, JOSEPH J. · 2019 to 2019
$858k
NIMH NIH HHS R01 MH114854NIMH NIH HHS R01 MH133657NIMH NIH HHS RF1 MH121378NINDS NIH HHS UH3 NS095554
6 · The paper itself

Abstract

Patient narratives from two investigational deep brain stimulation trials for traumatic brain injury and obsessive-compulsive disorder reveal that injury and illness rob individuals of personal identity and that neuromodulation can restore it. The early success of these interventions makes a compelling case for continued post-trial access to these technologies. Given the centrality of personal identity to respect for persons, a failure to provide continued access can be understood to represent a metaphorical identity theft. Such a loss recapitulates the pain of an individual's initial injury or illness and becomes especially tragic because it could be prevented by robust policy. A failure to fulfill this normative obligation constitutes a breach of disability law, which would view post-trial access as a means to achieve social reintegration through this neurotechnological accommodation.

Indexed as

Deep Brain StimulationObsessive-Compulsive DisorderAftercareDuty to RecontactHumansMoral Obligationsdeep brain stimulationdisability rightsidentity theftobsessive-compulsive disorderpersonal identityresearch ethicstraumatic brain injury

Identifiers

PMID38390681
PMCPMC11022755

What OpenQuestion holds

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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.