ArticleAutism : the international journal of research and practice2024
Social media shaping autism perception and identity.
Article in Autism : the international journal of research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 26 citations in OpenAlex.
- Looking Through a Cultural Perspective: Autistic Young Adults' Experiences and Expectations in Sexuality and Relationship Education in the U.S.Journal of autism and developmental disorders · 2026Article
- Wikipediautism: A Multilingual Analysis of Autism-Related Wikipedia Articles in Six Languages.Journal of autism and developmental disorders · 2026Article
- Large Language Model-Assisted Annotation Framework for Cross-Platform Analysis of Online Autism Communities: Implications for Parent Education and Digital Support.Journal of medical Internet research · 2026Article
- "Autism Diagnosis as a Guide": Taiwanese Adolescents' Own Experiences of Receiving Autism Diagnoses.Autism : the international journal of research and practice · 2026Article
- Autism Information Progression and the Impact of Misinformation on Autism Knowledge, Awareness and Stigmatization.Behavioral sciences (Basel, Switzerland) · 2026Article
- Topic Modeling of Social Media Discourse of Autism Support Groups.Behavioral sciences (Basel, Switzerland) · 2026Article
- Discursive constructions of autism on social media: a multilingual analysis across five languages.Frontiers in psychology · 2026Article
- How Diagnostically Accurate are #Autism Portrayals? A Latent Space Item Response Modeling Approach.Journal of autism and developmental disorders · 2025Article
- Deconstructing Information About Autism Diagnosis in Adults on TikTok: A Cross-Sectional, Descriptive Content Analysis.Journal of autism and developmental disorders · 2025Article
- Assessing AI-Generated Autism Information for Healthcare Use: A Cross-Linguistic and Cross-Geographic Evaluation of ChatGPT, Gemini, and Copilot.Healthcare (Basel, Switzerland) · 2025Article
- Stigma and Misinformation About Autism Spectrum Disorder (ASD) on Tiktok and Instagram: Content Analysis Using #ASD, #Autism and #ASDinfo.Journal of autism and developmental disorders · 2025Article
- "I'm not feeling alone in my experiences": How newly diagnosed autistic adults engage with a neurodiversity-affirming "Welcome Pack".Autism : the international journal of research and practice · 2025Article
- Protocol for an undergraduate student-led scoping review of methods used to conduct inclusive focus groups with autistic adolescents.PloS one · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
lay abstractThis study suggested that social media can provide important information about autism to autistic people. We interviewed 12 autistic adults (aged 18-49 years) and talked to them about the use of social media to find both general information and content specifically about autism, autism identity and online autistic communities. There is little research exploring how autistic people find information about autism on social media and how that makes them feel. Therefore, it is important to ask autistic people about their experiences with using social media to obtain content about autism. The 12 participants explained that when they searched for information about autism on the official health pages, they often felt that the information they found was insufficient and could not answer their questions. In addition, they searched on social media platforms for information about autism despite that they perceived social media as an unreliable source. On the social media platforms, many found content that was positive in relation to their autistic identities. The participants also found comfort in some of the forums and social media groups and received helpful advice. Nevertheless, some of the discussions were aggressive and the participants felt alienated, which did not provide a sense of community online. The findings from the study may advice on what is missing in the official pages about autism, and highlight the need to involve the autistic community in writing the content on such platforms.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.