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ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2024

Measuring patient activation: the utility of the Patient Activation Measure administered in an interview setting.

Magdalena Holter, Alexander Avian, Martin Weger, Sanja Strini, Monja Michelitsch, Katja Brenk-Franz, Andreas Wedrich, Andrea Berghold

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
4.2field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 5 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 2 institutions in 2 countries.

Magdalena HolterInstitute for Medical Informatics, Statistics and Documentation, Medical University of Graz, Graz, Austria.
Alexander AvianInstitute for Medical Informatics, Statistics and Documentation, Medical University of Graz, Graz, Austria. alexander.avian@medunigraz.at.ORCID http://orcid.org/0000-0003-1084-5763
Martin WegerDepartment of Ophthalmology, Medical University of Graz, Graz, Austria.
Sanja StriniDepartment of Ophthalmology, Medical University of Graz, Graz, Austria.
Monja MichelitschDepartment of Ophthalmology, Medical University of Graz, Graz, Austria.
Katja Brenk-FranzInstitute of Psychosocial Medicine, Psychotherapy and Psychooncology, Jena University Hospital, Jena, Germany.
Andreas WedrichDepartment of Ophthalmology, Medical University of Graz, Graz, Austria.
Andrea BergholdInstitute for Medical Informatics, Statistics and Documentation, Medical University of Graz, Graz, Austria.
Medical University of Graz · ATJena University Hospital · DE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatient activation is an emerging field in healthcare research concerning knowledge, skills, and confidence of patients in managing their health. This is particularly important for patients with chronic diseases, who often require more complex care management and self-care skills. However, due to temporary or longer-lasting visual impairments, certain patient groups cannot answer a questionnaire independently. The main objective is to investigate the psychometric properties of the German Patient Activation Measure® (PAM) survey in an everyday clinical setting where it has to be read aloud.

methodsOutpatients with macular edema participated in this questionnaire-based cross-sectional study. The study assessed patient activation by the PAM® survey, self-rated health, self-efficacy, quality of life, and general mood. Interviewers read questionnaires aloud to patients. Psychometric properties of the PAM® survey were investigated by item response theory (IRT), Cronbach's α and trait-trait correlations.

resultsThe analysis included N = 554 patients. Median age was 69 (IQR 62.0-76.0) years and mean overall activation score 74.1 (SD 13.7). All items showed ceiling effects. Empirical reliability from the IRT model and Cronbach's α were 0.75. The PAM® survey showed a Spearman correlation of 0.54 with self-efficacy, 0.51 with quality of life and 0.34 with general mood.

conclusionThe read-aloud PAM® survey has been shown to provide to adequate measurement precision and convergent validity to be used as a screening tool in an everyday clinical setting. Objective assessment in an interview setting with the PAM® survey is possible. PAM® items are good in distinguishing lower to middle activated patients, but not patients with high activation. Further, issues with structural validity need more investigation.

Indexed as

Patient ParticipationPsychometricsQuality of LifeAgedCross-Sectional StudiesFemaleGermanyHumansInterviews as TopicMacular EdemaMaleMiddle AgedReproducibility of ResultsSelf CareSelf EfficacySurveys and QuestionnairesItem response theoryMode of questionnaire administrationPatient Activation Measure®Psychometrics

Identifiers

PMID38388807
PMCPMC11045573
OpenAlexW4392028407

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.