Evidence map›Paper›PMID 38386101›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2024

Patient-reported symptom monitoring: using (big) data to improve supportive care at the macro-, meso-, and micro-levels.

Yan Wang, Matthew J Allsop, Joel B Epstein, Doris Howell, Bernardo L Rapoport, Penelope Schofield, Ysabella Van Sebille, Melissa S Y Thong, Iris Walraven, Julie Ryan Wolf and 1 more

Abstract read
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In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Patient-reported evaluation of oral/dental health in oncology care-a need and opportunity to support medically necessary oral care needs.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Yan WangDepartment of Health and Community Systems, School of Nursing, University of Pittsburgh, 3500 Victoria Street, Pittsburgh, PA, 15261, USA.ORCID https://orcid.org/0000-0002-3136-3109
Matthew J AllsopAcademic Unit of Palliative Care, Leeds Institute of Health Sciences, University of Leeds, 6 Clarendon Way, Woodhouse, Leeds, LS2 9LH, UK.ORCID https://orcid.org/0000-0002-7399-0194
Joel B EpsteinCity of Hope Comprehensive Cancer Center, 1500 East Duarte Road, Duarte, CA, 91010, USA.
Doris HowellPrincess Margaret Cancer Research Institute, 610 University Avenue, Toronto, ON, M5G 2M9, Canada.ORCID https://orcid.org/0000-0002-0683-8715
Bernardo L RapoportThe Medical Oncology Centre of Rosebank, 129 Oxford Road, Saxonwold, Johannesburg, 2196, South Africa.ORCID https://orcid.org/0000-0001-7610-3653
Penelope SchofieldDepartment of Psychology, and Iverson Health Innovation Research Institute Swinburne University, John St, Hawthorn, VIC, 3122, Australia.ORCID https://orcid.org/0000-0001-9495-9543
Ysabella Van SebilleUniversity of South Australia, 61-68 North Terrace, Adelaide, SA, 5000, Australia.ORCID https://orcid.org/0000-0002-5803-3230
Melissa S Y ThongUnit of Cancer Survivorship (C071), German Cancer Research Center (DKFZ), Im Neuenheimer Feld 581, 69120, Heidelberg, Germany.ORCID https://orcid.org/0000-0002-6987-705X
Iris WalravenDepartment of Health Evidence, Radboud University Nijmegen Medical Center, Geert Grooteplein Zuid 10, 6525, GA, Nijmegen, The Netherlands.ORCID https://orcid.org/0000-0002-6083-730X
Julie Ryan WolfDepartment of Dermatology, Department of Radiation Oncology, University of Rochester Medical Center, 601 Elmwood Ave, Box 697, Rochester, NY, 14642, USA.ORCID https://orcid.org/0000-0002-0592-7820
Corina J G van den HurkDepartment of Research and Development, Netherlands Comprehensive Cancer Organization (IKNL), Rijnkade 5, 3511, LC, Utrecht, The Netherlands. C.vandenHurk@iknl.nl.ORCID https://orcid.org/0000-0002-7802-1034

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThis paper aims to provide a comprehensive understanding of the need for continued development of symptom monitoring (SM) implementation, utilization, and data usage at the macro-, meso-, and micro-levels.

methodsDiscussions from a patient-reported SM workshop at the MASCC/ISSO 2022 annual meeting were analyzed using a macro-meso-micro analytical framework of cancer care delivery. The workshop categories "initiation and implementation, barriers to adoption and utilization, and data usage" were integrated for each level.

resultsAt the macro-level, policy development could encourage data sharing and international collaboration, including the exchange of SM methods, supportive care models, and self-management modules. At the meso-level, institutions should adjust clinical workflow and service delivery and promote a thorough technical and clinical integration of SM. At the micro-level, SM should be individualized, with timely feedback for patients, and should foster trust and understanding of AI decision support tools amongst clinicians to improve supportive care.

conclusionsThe workshop reached a consensus among international experts on providing guidance on SM implementation, utilization, and (big) data usage pathways in cancer survivors across the cancer continuum and on macro-meso-micro levels.

Indexed as

Cancer SurvivorsCognitionConsensusHumansInformation DisseminationPatient Reported Outcome MeasuresReal-world dataSupportive careSymptom monitoring

Identifiers

PMID38386101

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.