Evidence map›Paper›PMID 38382949›Full record

SynthesisBMJ open2024

Patient-report and caregiver-report measures of rehabilitation service use following acquired brain injury: a systematic review.

Sophie McCormick, Jessica M Jarvis, Lauren Terhorst, Amanda Richardson, Lauren Kaseman, Aboli Kesbhat, Yamini Yepuri, Elizabeth Beyene, Helena VonVille, Roxanna Bendixen and 1 more

Abstract readSystematic Review
In one paragraph

Synthesis in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Sophie McCormickDepartment of Physical Medicine & Rehabilitation, School of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.
Jessica M JarvisDepartment of Physical Medicine & Rehabilitation, School of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.ORCID 0000-0003-2988-7429
Lauren TerhorstDepartment of Occupational Therapy, SHRS Data Center, School of Health and Rehabilitation Sciences, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.ORCID 0000-0002-2326-8005
Amanda RichardsonDepartment of Physical Medicine & Rehabilitation, School of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.
Lauren KasemanDepartment of Physical Medicine & Rehabilitation, School of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.
Aboli KesbhatCollege of Medicine, Drexel University, Philadelphia, Pennsylvania, USA.
Yamini YepuriDepartment of Physical Medicine & Rehabilitation, School of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.
Elizabeth BeyeneDepartment of Physical Medicine & Rehabilitation, School of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.
Helena VonVilleHealth Sciences Library System, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.ORCID 0000-0001-5193-2391
Roxanna BendixenDivision of Occupational Therapy, College of Health Professions, Medical University of South Carolina, Charleston, South Carolina, USA.ORCID 0000-0002-7728-0624
Amery Treble-BarnaDepartment of Physical Medicine & Rehabilitation, School of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania, USA amery.treble-barna@pitt.edu.ORCID 0000-0003-3980-7293

Funding

Epigenetic Influences on Neurobehavioral Recovery following Pediatric Traumatic Brain InjuryK01HD097030 · NICHD · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI TREBLE-BARNA, AMERY · 2019 to 2023
$642k
Development and Initial Validation of a Caregiver-Report MeasureR03HD101746 · NICHD · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI TERHORST, LAUREN, TREBLE-BARNA, AMERY · 2021 to 2022
$158k
NICHD NIH HHS K01 HD097030NICHD NIH HHS R03 HD101746
6 · The paper itself

Abstract

objectiveTo review patient-report/caregiver-report measures of rehabilitation service use following acquired brain injury (ABI). DATA SOURCES: Medline, APA PsycINFO, Embase and CINAHL were searched on November 2021 and November 2022. Authors were contacted if measures were not included in manuscripts/appendices. STUDY SELECTION: Included articles were empirical research or a research protocol, available in English and described measures of patient report/caregiver report of rehabilitation service use post-ABI via quantitative or qualitative methods. Two reviewers independently screened 5290 records using DistillerSR. Discrepancies were resolved by team adjudication. DATA EXTRACTION: Data extraction was piloted with high levels of agreement (k=.94). Data were extracted by a single member with team meetings to seek guidance as needed. Data included administration characteristics (reporter, mode of administration, recall period), psychometric evidence and dimensions assessed (types of services, setting, frequency, duration, intensity, qualitative aspects). DATA SYNTHESIS: One hundred and fifty-two measures were identified from 85 quantitative, 56 qualitative and 3 psychometric studies. Psychometric properties were reported for four measures, all of which focused on satisfaction. Most measures inquired about the type of rehabilitation services used, with more than half assessing functional (eg, physical therapy) and behavioural health rehabilitation services, but fewer than half assessing community and academic reintegration (eg, special education, vocational rehabilitation) or cognitive (eg, neuropsychology) services. Fewer than half assessed qualitative aspects (eg, satisfaction). Recall periods ranged from 1 month to 'since the ABI event' or focused on current use. Of measures that could be accessed (n=71), many included a limited checklist of types of services used. Very few measures assessed setting, frequency, intensity or duration.

conclusionsDespite widespread interest, the vast majority of measures have not been validated and are limited in scope. Use of gold-standard psychometric methods to develop and validate a comprehensive patient-report/caregiver-report measure of rehabilitation service use would have wide-ranging implications for improving rehabilitation research in ABI.

Indexed as

Brain InjuriesCaregiversHumansPatient Reported Outcome MeasuresPsychometricsPatient Reported Outcome MeasuresREHABILITATION MEDICINEStroke

Identifiers

PMID38382949
PMCPMC10882343

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.