ArticleBMC geriatrics2024
Trajectories of negative and positive experiences of caregiving for older adults with severe dementia: application of group-based multi-trajectory modelling.
Article in BMC geriatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03382223 (Panel Study Investigating Status of Cognitively Impaired Elderly in Singapore), which is not on this map. Cited by 7 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Panel Study Investigating Status of Cognitively Impaired Elderly in Singapore
Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it, 10 citations in OpenAlex.
- Unpaid dementia carers: a scoping review of the caregiving trajectory and changing short break needs.Frontiers in health services · 2025Pooled it
- Advancing Family Medicine Through Dyadic Electronic Medical Record Linkage in Dementia Care.Annals of family medicine · 2026Article
- Anticipatory grief among caregivers of people living with dementia: A scoping review.Palliative & supportive care · 2026Article
- Joint trajectories of burden and benefits of caregiving among informal caregivers of older adults with functional limitations: a longitudinal study.Scientific reports · 2026Article
- Benefit Finding and Growth Among Family Caregivers of Individuals With Mental Illness: A Scoping Review.Journal of family nursing · 2025Article
- Trajectories of Burden or Benefits of Caregiving Among Informal Caregivers of Older Adults: A Systematic Review.Innovation in aging · 2025Review
- Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
backgroundFamily caregivers of older adults with severe dementia have negative and positive experiences over the course of caregiving. We aimed to delineate joint trajectories (patterns over time) for negative and positive experiences, identify risk factors associated with membership of joint trajectories, and ascertain the association between joint trajectories and caregivers' outcomes after the death of the older adult.
methodsTwo hundred fifteen family caregivers of older adults with severe dementia in Singapore were surveyed every 4 months for 2 years, and 6 months after the death of the older adult. Using group-based multi trajectory modelling, we delineated joint trajectories for positive (Gain in Alzheimer Care Instrument) and negative (sub-scales of modified Caregiver Reaction Assessment) experiences of caregiving.
resultsWe identified four joint trajectories - "very high positive, low negative" (23% of caregivers), "high positive, moderate negative" (28%), "very high positive, moderate negative" (28%), and "high positive, high negative" (21%). Caregivers of older adults with more behavioural symptoms, and who did not receive strong emotional support from family were more likely to have "high positive, moderate negative" or "very high positive, moderate negative" trajectory. Compared to caregivers with "very high positive, low negative" trajectory, caregivers with "very high positive, moderate negative" or "high positive, high negative" trajectories expressed greater grief and distress, with the latter also having lower spiritual well-being and quality of life at 6 months after the death of the older adult.
conclusionThe caregiving experiences for older adults with severe dementia vary between caregivers but remain stable over time. Modifiable risk factors identified for trajectories involving negative experiences of caregiving may be targeted in future interventions to improve the experience of caregiving and caregiver quality of life and distress after the death of the older adult.
trial registrationhttp://www. CLINICALTRIALS: gov (NCT03382223).
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