ArticleThe British journal of psychiatry : the journal of mental science2024
Participatory translational science of neurodivergence: model for attention-deficit/hyperactivity disorder and autism research.
Article in The British journal of psychiatry : the journal of mental science, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
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Who cites it
20 citing papers in PubMed, 28 citations in OpenAlex.
- "Who I am": understanding the self-identity process of autism in adults in the UK.International journal of qualitative studies on health and well-being · 2026Article
- Co-design of a complex school-based intervention for attention deficit/hyperactivity disorder using the Intervention Mapping approach.JCPP advances · 2026Article
- Research Review: A scoping review exploring the needs, barriers, and facilitators to the collection of biological data in adolescence for mental health research.Journal of child psychology and psychiatry, and allied disciplines · 2026Review
- Lessons learned from including Patient and Public Involvement members throughout research projects in Tic Disorder research.Research involvement and engagement · 2026Article
- Article
- Autistic and ADHD adolescents respond differently to upset in school: evidence from a new questionnaire co-designed from the neurodivergent point of view.European child & adolescent psychiatry · 2026Article
- Annual Research Review: Improving school climate to improve child and adolescent mental health and reduce inequalities.Journal of child psychology and psychiatry, and allied disciplines · 2026Review
- From Participants to Community Partners: A Novel Community-Based Participatory Research (CBPR) Approach to Autistic-Led Inquiry in Digital and Virtual Environments.Healthcare (Basel, Switzerland) · 2026Article
- Comparing qualitative thematic analysis and machine-based topic modelling in the analysis of autistic and ADHD young people's accounts of emotions.Scientific reports · 2026Article
- Editorial: Advances in the social determinants of health for college students with ADHD.Frontiers in psychiatry · 2026Article
- Situating emotion regulation in autism and ADHD through neurodivergent adolescents' perspectives.Scientific reports · 2025Article
- Emotional burden in school as a source of mental health problems associated with ADHD and/or autism: Development and validation of a new co-produced self-report measure.Journal of child psychology and psychiatry, and allied disciplines · 2025Article
- Factors that affect clinical youth engagement in digital mental health research: a qualitative sub-study nested within a prospective cohort study.BMC medical research methodology · 2025Observational
- Unmet Needs of Children and Young Adults With ADHD: Insights From Key Stakeholders on Priorities for Stigma Reduction.Journal of attention disorders · 2025Article
- Exploring similarities and differences in how researchers and young people understand key terms in youth mental-health research.Humanities & social sciences communications · 2025Article
- Struggling to be heard: A scoping review of user participation in ADHD mental healthcare for children and adolescents.Scandinavian journal of child and adolescent psychiatry and psychology · 2025Review
- Article
- Neurodivergence, intersectionality, and eating disorders: a lived experience-led narrative review.Journal of eating disorders · 2024Review
- Article
- Applied Principles for Inclusive Practice in Neurodevelopmental Research: A Selection and Report of Illustrative Case Studies.Current developmental disorders reports · 2024Review
Corrections and comments
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Authors and funding
15 authors at 4 institutions in 1 country.
Funding
Abstract
backgroundThere are increasing calls for neurodivergent peoples' involvement in research into neurodevelopmental conditions. So far, however, this has tended to be achieved only through membership of external patient and public involvement (PPI) panels. The Regulating Emotions - Strengthening Adolescent Resilience (RE-STAR) programme is building a new participatory model of translational research that places young people with diagnoses of attention-deficit hyperactivity disorder (ADHD) and autism at the heart of the research team so that they can contribute to shaping and delivering its research plan.
aimsTo outline the principles on which the RE-STAR participatory model is based and describe its practical implementation and benefits, especially concerning the central role of members of the Youth Researcher Panel (Y-RPers).
methodThe model presented is a culmination of a 24-month process during which Y-RPers moved from advisors to co-researchers integrated within RE-STAR. It is shaped by the principles of co-intentionality. The account here was agreed following multiple iterative cycles of collaborative discussion between academic researchers, Y-RPers and other stakeholders.
resultsBased on our collective reflections we offer general guidance on how to effectively integrate young people with diagnoses of ADHD and/or autism into the core of the translational research process. We also describe the specific theoretical, methodological and analytical benefits of Y-RPer involvement in RE-STAR.
conclusionsAlthough in its infancy, RE-STAR has demonstrated the model's potential to enrich translational science in a way that can change our understanding of the relationship between autism, ADHD and mental health. When appropriately adapted we believe the model can be applied to other types of neurodivergence and/or mental health conditions.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.