Evidence map›Paper›PMID 38358616›Full record

ArticleJournal of epidemiology and global health2024

Saudi Cerebral Palsy Register (SCPR): Protocol on the Methods and Technical Details.

Sami Mukhdari Mushta, Riyad Alghamdi, Hani Almalki, Saadia Waqas, Adel Alawwadh, Osamah Barasheed, Mohammad Garnan, Sarah McIntyre, Harunor Rashid, Nadia Badawi and 1 more

Abstract read
In one paragraph

Article in Journal of epidemiology and global health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Sami Mukhdari MushtaPublic Health Authority (PHA), 13351, Riyadh, Saudi Arabia. smmushta@pha.gov.sa.
Riyad AlghamdiPublic Health Authority (PHA), 13351, Riyadh, Saudi Arabia.
Hani AlmalkiPublic Health Agency, Ministry of Health, 12382, Riyadh, Saudi Arabia.
Saadia WaqasKing Fahad Center, Children with Disability Association (CDA), 12273, Riyadh, Saudi Arabia.
Adel AlawwadhKhamis Mushayt Maternity and Children Hospital (KMMCH), 62454, Khamis Mushayt, Saudi Arabia.
Osamah BarasheedThe Executive Administration of Research and Innovation, King Abdullah Medical City in Holy Capital (KAMC-HC), 24246, Makkah, Saudi Arabia.
Mohammad GarnanPublic Health Administration, Asir Health, 62523, Abha, Saudi Arabia.
Sarah McIntyreCerebral Palsy Alliance Research Institute, Specialty of Child and Adolescent Health, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Camperdown, NSW, 2050, Australia.
Harunor RashidThe Children's Hospital at Westmead Clinical School, Faculty of Medicine and Health, The University of Sydney, Westmead, NSW, 2145, Australia.
Nadia BadawiCerebral Palsy Alliance Research Institute, Specialty of Child and Adolescent Health, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Camperdown, NSW, 2050, Australia.
Gulam KhandakerCentral Queensland Public Health Unit, Central Queensland Hospital and Health Service, Rockhampton, QLD, 4700, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This protocol presents a comprehensive proposal for the establishment of the Saudi Cerebral Palsy Register (SCPR), a crucial project for investigating and addressing the prevalence, etiology, and management of cerebral palsy (CP) in Saudi Arabia. The SCPR will not only provide a robust database for ongoing research and analysis but will also serve as a platform for investigating the causes of CP, implementing preventative strategies, and improving the quality of care and outcomes for people with CP and their families in Saudi Arabia. Detailed case definitions, inclusion/exclusion criteria, and data collection protocols are discussed to ensure the integrity and comparability of the data. The plan also outlines strategic funding, institutional and government endorsement, sustainability considerations, potential challenges and proposed solutions, and expected outcomes and impact. These include creating research and educational opportunities, fostering regional and international collaborations, and significantly contributing to CP prevention strategies. Overcoming anticipated obstacles, such as stigma, institutional policies, and collaborations, and securing both necessary funding and endorsements are highlighted as critical for the success of the SCPR. The project is not only aligned with promote prevention of health risks, a target of Vision 2030 in Saudi Arabia, but is also expected to have a substantial impact on the health and quality of life of people with CP and their families in Saudi Arabia, serving as inspiration for similar efforts worldwide.

Indexed as

Cerebral PalsyRegistriesHumansPrevalenceSaudi ArabiaCerebral palsyEpidemiologyPediatricsPreventionRegisterSaudi ArabiaSurveillance

Identifiers

PMID38358616
PMCPMC11176122

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.