Evidence map›Paper›PMID 38358084›Full record

Trial reportAlzheimer's & dementia : the journal of the Alzheimer's Association2024

The dementia care study (D-CARE): Recruitment strategies and demographic characteristics of participants in a pragmatic randomized trial of dementia care.

Mia Yang, Rafael Samper-Ternent, Elena Volpi, Aval-Na'Ree Green, Maya Lichtenstein, Katy Araujo, Pamela Borek, Peter Charpentier, James Dziura, Thomas M Gill and 13 more

Registry-linked trialOpen access · hybridAbstract readRandomized Controlled TrialPragmatic Clinical Trial
In one paragraph

Trial report in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06805578 (Exploring and Evaluating the Impact of 'Refresh and Reconnect!'), which is not on this map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
3.8field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06805578 nacompletednot on this mapstarted 2025, after this paper: background citation

Exploring and Evaluating the Impact of 'Refresh and Reconnect!': A Museum-based Heritage Programme for Older Persons With Cognitive Impairment

TypeinterventionalSponsorDuke-NUS Graduate Medical SchoolRan2025 to 2026Enrolled108ConditionsMild Cognitive Impairment (MCI), Ageing, Mild Dementia, Well-beingArmsHeritage art programme
3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 8 citations in OpenAlex.

  1. Correlates and predictors of self-efficacy among dementia caregivers: D-CARE findings.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026
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  2. Self-efficacy change among diverse family caregivers in dementia care.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

23 authors at 8 institutions in 1 country.

Mia YangSection on Geriatric Medicine & Gerontology and the Sticht Center for Healthy Aging and Alzheimer's Prevention, Department of Internal Medicine, Wake Forest School of Medicine, Atrium Health Wake Forest Baptist, Winston Salem, North Carolina, USA.ORCID 0000-0002-5439-3706
Rafael Samper-TernentSchool of Public Health, and Institute on Aging, The University of Texas Health Science Center in Houston, Houston, Texas, USA.
Elena VolpiSealy Center on Aging, The University of Texas Medical Branch- Galveston, Galveston, Texas, USA.
Aval-Na'Ree GreenCenter for Applied Health Research, Baylor Scott & White Health & Texas A&M Health Sciences Center, Temple, Texas, USA.
Maya LichtensteinDepartment of Neurology, Geisinger Medical Center, Wilkes-Barre, Pennsylvania, USA.
Katy AraujoDepartment of Internal Medicine, Section of Geriatrics, Yale School of Medicine, New Haven, Connecticut, USA.
Pamela BorekDepartment of Neurology, Geisinger Medical Center, Wilkes-Barre, Pennsylvania, USA.
Peter CharpentierDepartment of Internal Medicine, Section of Geriatrics, Yale School of Medicine, New Haven, Connecticut, USA.
James DziuraYale Center for Analytical Sciences, Yale School of Public Health, New Haven, Connecticut, USA.
Thomas M GillDepartment of Internal Medicine, Section of Geriatrics, Yale School of Medicine, New Haven, Connecticut, USA.
Rebecca GallowaySealy Center on Aging, The University of Texas Medical Branch- Galveston, Galveston, Texas, USA.
Erich J GreeneYale Center for Analytical Sciences, Yale School of Public Health, New Haven, Connecticut, USA.
Kristin LenoirSection on Geriatric Medicine & Gerontology and the Sticht Center for Healthy Aging and Alzheimer's Prevention, Department of Internal Medicine, Wake Forest School of Medicine, Atrium Health Wake Forest Baptist, Winston Salem, North Carolina, USA.
Peter PeduzziYale Center for Analytical Sciences, Yale School of Public Health, New Haven, Connecticut, USA.
Can MengYale Center for Analytical Sciences, Yale School of Public Health, New Haven, Connecticut, USA.
Jordan ReeseCenter for Applied Health Research, Baylor Scott & White Health & Texas A&M Health Sciences Center, Temple, Texas, USA.
Amy SheltonYale Center for Analytical Sciences, Yale School of Public Health, New Haven, Connecticut, USA.
Eleni A SkokosYale Center for Analytical Sciences, Yale School of Public Health, New Haven, Connecticut, USA.
Jenny SummapundMulticampus Program in Geriatric Medicine & Gerontology, Division of Geriatrics, David Geffen School of Medicine at UCLA, University of California, Los Angeles, California, USA.
Erin UngerMulticampus Program in Geriatric Medicine & Gerontology, Division of Geriatrics, David Geffen School of Medicine at UCLA, University of California, Los Angeles, California, USA.
David B ReubenMulticampus Program in Geriatric Medicine & Gerontology, Division of Geriatrics, David Geffen School of Medicine at UCLA, University of California, Los Angeles, California, USA.
Jeff D WilliamsonSection on Geriatric Medicine & Gerontology and the Sticht Center for Healthy Aging and Alzheimer's Prevention, Department of Internal Medicine, Wake Forest School of Medicine, Atrium Health Wake Forest Baptist, Winston Salem, North Carolina, USA.
Alan B StevensCenter for Applied Health Research, Baylor Scott & White Health & Texas A&M Health Sciences Center, Temple, Texas, USA.
Atrium Health Wake Forest Baptist · USBaylor Scott & White Health · USUniversity of California, Los Angeles · USYale University · USGeisinger Medical Center · USInstitute on Aging · USThe University of Texas Health Science Center at San Antonio · USThe University of Texas Medical Branch at Galveston · US

Funding

Yale Clinical and Translational Science Award (U Component)UL1TR001863 · NCATS · YALE UNIVERSITY · PI John H. Krystal, LUCILA OHNO-MACHADO · 2016 to 2026
$102.9M
Yale Study Support Suite (YES3): Dashboard and Web Portal Software Supporting Research Workflow through integrated, customizable REDCap External ModulesP30AG021342 · NIA · YALE UNIVERSITY · PI Lauren Ferrante · 2002 to 2026
$37.9M
Yale University Clinical and Translational Science Award ProgramUL1TR000142 · NCATS · YALE UNIVERSITY · PI SHERWIN, ROBERT S · 2012 to 2015
$31.8M
UTMB OAIC Research Education Component (REC)P30AG024832 · NIA · UNIVERSITY OF TEXAS MEDICAL BR GALVESTON · PI JAMES S. GOODWIN, MD, MELISSA M. MORROW · 2005 to 2026
$26.7M
Wake Forest University School of Medicine Alzheimer's Disease Research CenterP30AG072947 · NIA · WAKE FOREST UNIVERSITY HEALTH SCIENCES · PI SUZANNE CRAFT · 2021 to 2026
$24.3M
San Antonio OAIC - Research Education Component (REC)P30AG044271 · NIA · UNIVERSITY OF TEXAS HLTH SCIENCE CENTER · PI Adam Salmon, Elena Volpi · 2015 to 2026
$14.1M
Wake Forest Alzheimer's Disease Core CenterP30AG049638 · NIA · WAKE FOREST UNIVERSITY HEALTH SCIENCES · PI WILLIAMSON, JEFF DOUGLAS · 2016 to 2020
$12.2M
Pragmatic Trial of the Effectiveness and Cost-Effectiveness of Dementia Care.R01AG061078 · NIA · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI REUBEN, DAVID B. · 2018 to 2023
$8.4M
NCATS NIH HHS UL1 TR000142NCATS NIH HHS UL1 TR001863NIA NIH HHS P30 AG021342NIA NIH HHS P30 AG024832NIA NIH HHS P30 AG049638NIA NIH HHS P30 AG072947NIA NIH HHS R01 AG061078Patient-Centered Outcomes Research Institute PCS-2017C1-6534
6 · The paper itself

Abstract

introductionPragmatic research studies that include diverse dyads of persons living with dementia (PLWD) and their family caregivers are rare.

methodsCommunity-dwelling dyads were recruited for a pragmatic clinical trial evaluating three approaches to dementia care. Four clinical trial sites used shared and site-specific recruitment strategies to enroll health system patients.

resultsElectronic health record (EHR) queries of patients with a diagnosis of dementia and engagement of their clinicians were the main recruitment strategies. A total of 2176 dyads were enrolled, with 80% recruited after the onset of the pandemic. PLWD had a mean age of 80.6 years (SD 8.5), 58.4% were women, and 8.8% were Hispanic/Latino, and 11.9% were Black/African American. Caregivers were mostly children of the PLWD (46.5%) or spouses/partners (45.2%), 75.8% were women, 9.4% were Hispanic/Latino, and 11.6% were Black/African American. DISCUSSION: Health systems can successfully enroll diverse dyads in a pragmatic clinical trial.

Indexed as

DementiaAged, 80 and overCaregiversChildFemaleHumansIndependent LivingMalecaregiversdementia carepragmatic clinical trialsrecruitment

Identifiers

PMID38358084
PMCPMC11032530
OpenAlexW4391837127

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.