Evidence map›Paper›PMID 38352143›Full record

ArticleFrontiers in medicine2024

Satisfaction with health care services in young people with cerebral palsy in the transition period: results from a European multicenter study.

Holger Muehlan, Joaquim Alvarelhao, Catherine Arnaud, Chirine Cytera, Jerome Fauconnier, Kate Himmelmann, Marco Marcelli, Henriette Markwart, Marion Rapp, Silke Schmidt and 1 more

Open access · goldAbstract read
In one paragraph

Article in Frontiers in medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
1.2field-weighted citation impact, top 24% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 3 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 7 institutions in 5 countries.

Holger MuehlanDepartment Health and Prevention, University of Greifswald, Greifswald, Germany.
Joaquim AlvarelhaoSchool of Health Sciences, University of Aveiro, Aveiro, Portugal.
Catherine ArnaudUMR 1295 CERPOP Centre for Epidemiology and Research in POPulation Health, Inserm, Université Toulouse III - Paul Sabatier, Team SPHERE, Toulouse, France.
Chirine CyteraHospital for Child and Adolescent Medicine, University of Luebeck, Luebeck, Germany.
Jerome FauconnierLaboratoire TIMC-IMAG Equipe ThEMAS, Pavillon Taillefer, Université Joseph Fournier, Grenoble, France.
Kate HimmelmannDepartment of Pediatrics, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Marco MarcelliAzienda Sanitaria Locale Viterbo, Child and Adolescent Neuropsychiatric Unit-Adult Disability Unit, Viterbo, Italy.
Henriette MarkwartInstitute for Community Medicine, University Medicine Greifswald, Greifswald, Germany.
Marion RappHospital for Child and Adolescent Medicine, University of Luebeck, Luebeck, Germany.
Silke SchmidtDepartment Health and Prevention, University of Greifswald, Greifswald, Germany.
Ute ThyenHospital for Child and Adolescent Medicine, University of Luebeck, Luebeck, Germany.
Universitätsmedizin Greifswald · DEUniversity of Lübeck · DEAzienda Sanitaria Locale Viterbo · ITTranslational Innovation in Medicine and Complexity · FRUniversité Toulouse III - Paul Sabatier · FRUniversity of Aveiro · PTUniversity of Gothenburg · SE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Young people with chronic health conditions and disabilities rely on the healthcare system to maintain their best possible health. The appropriate delivery and utilization of healthcare services are key to improve their autonomy, self-efficacy and employment outcomes. The research question of our study is directed toward investigating if poor availability and accessibility of healthcare services in general, as identified by unmet needs in healthcare, are associated with dissatisfaction with healthcare. Methods: Within a European multicenter observational study, 357 young adults with cerebral palsy aged 19-28 were included. We assessed special healthcare needs, utilization of healthcare services, and satisfaction with healthcare applying the short-form of the YHC-SUN-SF, environmental and social variables (EAEQ) as well as indicators for severity of condition and functionality (e.g., GMFCS) of these participants based on a self-, assisted self- or proxy-reports. We used correlation analyses to explore associations between satisfaction with healthcare and respective indicators related to availability and accessibility of healthcare services as well as severity of the condition. In addition, we included reference values for satisfaction with heath care from young adults with various chronic conditions assessed within population-based surveys from some of the European countries included in the study. Results: We identified several unmet healthcare needs, especially for widely used and established services (e.g., physical therapy). Satisfaction with healthcare (YHC-SUN-SF general and subscale scores) was moderate to high and almost consistently better for the sample of young adults with cerebral palsy as compared to reference values for young adults with various chronic conditions assessed within general population surveys). Correlation coefficients between satisfaction with healthcare and utilization of services and (unmet) healthcare needs were low, also with different indicators for severity of the condition or functionality. Conclusion: Young adults with cerebral palsy reports of unmet healthcare needs varied largely but showed substantial deficits in some aspects. This seems to have no impact on the satisfaction with healthcare those patients currently receive. We conclude that these are two different constructs and somewhat independent indicators to evaluate the quality of healthcare. Clinicians and other practitioners should consider this distinction when monitoring patient needs in their daily practice.

Indexed as

cerebral palsychronic conditionemerging adulthoodhealthcare utilizationsatisfaction with carespecial needstransitionyoung adults

Identifiers

PMID38352143
PMCPMC10862483
OpenAlexW4391375715

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.