Evidence map›Paper›PMID 38351521›Full record

ArticleAutism : the international journal of research and practice2024

The Gestalt of functioning in autism revisited: First revision of the International Classification of Functioning, Disability and Health Core Sets.

Sven Bölte, Lovisa Alehagen, Melissa H Black, John Hasslinger, Elina Wessman, Karl Lundin Remnélius, Peter B Marschik, Emily D'Arcy, Susanna Crowson, Megan Freeth and 3 more

Abstract read
In one paragraph

Article in Autism : the international journal of research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 1 synthesis or guideline pooled it.

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  6. Neurodevelopmental conditions and adaptive functioning - a co-twin control study.Journal of child psychology and psychiatry, and allied disciplines · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Sven BölteKarolinska Institutet, Sweden.ORCID 0000-0002-4579-4970
Lovisa AlehagenKarolinska Institutet, Sweden.
Melissa H BlackKarolinska Institutet, Sweden.ORCID 0000-0003-0293-4053
John HasslingerKarolinska Institutet, Sweden.
Elina WessmanKarolinska Institutet, Sweden.
Karl Lundin RemnéliusKarolinska Institutet, Sweden.ORCID 0000-0002-0270-8358
Peter B MarschikKarolinska Institutet, Sweden.
Emily D'ArcyCurtin University, Australia.
Susanna CrowsonUniversity of Sheffield, UK.ORCID 0000-0002-4420-8669
Megan FreethUniversity of Sheffield, UK.ORCID 0000-0003-0534-9095
Andreas SeidelUniversity of Applied Sciences Nordhausen, Germany.ORCID 0000-0001-9657-3580
Sonya GirdlerKarolinska Institutet, Sweden.
Eric ZanderKarolinska Institutet, Sweden.ORCID 0000-0002-2267-5813

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

lay abstractAutistic people experience individual strengths and challenges as well as barriers and facilitators in their environment. All of these factors contribute to how well autistic people can cope in everyday life, fulfill the roles they choose, and meet their needs. The World Health Organization has developed a system aiming to capture the many factors within people (like how someone thinks and feels) and outside of people (things around a person) that influence their daily living, called the International Classification of Functioning, Disability and Health. The International Classification of Functioning, Disability and Health can be used for different purposes in research and practice to assess people's situations and plan support measures. Previously in 2019, the International Classification of Functioning, Disability and Health was adapted to autism by developing so-called Core Sets, which are shorter International Classification of Functioning, Disability and Health versions for use in specific conditions. Here, we present the first revisions of the International Classification of Functioning, Disability and Health Core Sets for autism, based on research, development results, and community feedback. Some factors influencing daily life for autistic people were added to the Core Sets, and other factors deemed less relevant were removed. Changes were also made in Core Sets designed for different age groups (0-5, 6-16, and ⩾17 years). Particularly, contents for sensory processing (like smell, touch, seeing, hearing) were added. We recommend these updated Core Sets for future use in autism research and practice. These changes to the Core Sets after 4 years indicate that there should be ongoing updates based on research and experience from practice and involvement of stakeholders.

Indexed as

Autistic DisorderInternational Classification of Functioning, Disability and HealthActivities of Daily LivingAdolescentAdultChildChild, PreschoolFemaleHumansInfantMaleYoung AdultadolescentsadultsassessmentautismchildrenCore SetsDisability and HealthfunctioningInternational Classification of FunctioningparticipationrevisionvalidationWorld Health Organization

Identifiers

PMID38351521
PMCPMC11402269

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.