Evidence map›Paper›PMID 38348488›Full record

ArticleJournal of genetic counseling2025

Inconvenient sampling: Community-engaged and restorative justice approaches to genetic counseling student research.

Kimberly Zayhowski, Emily Glanton, Ian M MacFarlane, Rebekah Pratt, Crystal Y Lumpkins, Heather Zierhut

Abstract read
In one paragraph

Article in Journal of genetic counseling, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
  4. Article
  5. Article
  6. Using mixed methods for genetic counseling research.Journal of genetic counseling · 2025
    Article
  7. Survey research in genetic counseling.Journal of genetic counseling · 2025
    Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Kimberly ZayhowskiDepartment of Obstetrics and Gynecology, Boston University Chobanian & Avedisian School of Medicine, Boston, Massachusetts, USA.ORCID 0000-0003-1712-6403
Emily GlantonDepartment of Genetics, Cell Biology, and Development, University of Minnesota, Minneapolis, Minnesota, USA.ORCID 0000-0002-1088-9208
Ian M MacFarlaneDepartment of Genetics, Cell Biology, and Development, University of Minnesota, Minneapolis, Minnesota, USA.ORCID 0000-0002-0896-1952
Rebekah PrattDepartment of Family Medicine and Community Health, University of Minnesota, Minneapolis, Minnesota, USA.ORCID 0000-0003-3561-8276
Crystal Y LumpkinsDepartment of Communication, Huntsman Cancer Institute, University of Utah, Salt Lake City, Utah, USA.ORCID 0000-0003-0963-0706
Heather ZierhutDepartment of Genetics, Cell Biology, and Development, University of Minnesota, Minneapolis, Minnesota, USA.ORCID 0000-0003-1941-664X

Funding

Understanding facilitators and barriers for the utilization of an Indigenized meal kit amongst urban Minnesota Native American youth and familiesP50MD017342 · NIMHD · UNIVERSITY OF MINNESOTA · PI ALLEN, MICHELE L, HARDEMAN, RACHEL R · 2021 to 2025
$24.8M
Genetic Counseling Fellowship in Research Training (GC-FIRST)R25HG012322 · NHGRI · UNIVERSITY OF MINNESOTA · PI ZIERHUT, HEATHER · 2022 to 2025
$1.0M
NHGRI NIH HHS 1 R25 HG012322-01NHGRI NIH HHS R25 HG012322NIMHD NIH HHS P50 MD017342
6 · The paper itself

Abstract

Genetic counseling research requires a comprehensive approach since it frequently serves as the foundation for clinical care practice. Genetic counseling students play a pivotal role in advancing the profession, as they contribute a significant proportion of the research conducted within the genetic counseling community. However, a prevailing trend of convenience sampling of genetic counselors has limited the diversity of perspectives in student research projects. This article promotes a strategy for greater inclusivity and equity in research by emphasizing community-engaged and empowered research through the perspective of restorative justice. Reflecting on the shadow of the harmful ideologies of eugenics in our profession underscores the need to amplify patients' voices and diverse experiences. Community-engaged research-in collaboration with individuals, families, and communities directly impacted by genetic counseling-transcends traditional research paradigms, empowering patients and addressing systemic inequities. Incorporating community-engaged research into genetic counseling student projects aims to empower future professionals to better understand patient perspectives and needs while working toward addressing historical injustices. This article explores the potential benefits and pathways of incorporating community-engaged research and restorative justice principles into genetic counseling scholarly work, promoting empathy, cultural responsiveness, and ultimately, a more patient-centered approach to research and clinical care. By embracing this collective journey toward authentic partnership in the production of high-quality evidence in genetic counseling student research and more broadly, genetic counseling can become a more just and inclusive practice.

Indexed as

Genetic CounselingSocial JusticeHumanscommunity‐engaged researchdiversityeducationgenetic counselingpatient‐oriented researchrestorative justice

Identifiers

PMID38348488
PMCPMC11323238

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.