Evidence map›Paper›PMID 38338201›Full record

ArticleHealthcare (Basel, Switzerland)2024

Adolescent Young Carers Who Provide Care to Siblings.

Rosita Brolin, Elizabeth Hanson, Lennart Magnusson, Feylyn Lewis, Tom Parkhouse, Valentina Hlebec, Sara Santini, Renske Hoefman, Agnes Leu, Saul Becker

Open access · goldAbstract read
In one paragraph

Article in Healthcare (Basel, Switzerland), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 2 pooled it
7.9field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 2 syntheses or guidelines pooled it, 7 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Article
  5. Article
  6. Article
  7. The Reaction to Diagnosis Questionnaire-Sibling Version: A Preliminary Study on the Psychometric Properties.European journal of investigation in health, psychology and education · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 8 institutions in 7 countries.

Rosita BrolinDepartment Health and Caring Sciences, Linnaeus University, SE-39182 Kalmar, Sweden.ORCID 0000-0001-8797-7591
Elizabeth HansonDepartment Health and Caring Sciences, Linnaeus University, SE-39182 Kalmar, Sweden.ORCID 0000-0001-7609-4822
Lennart MagnussonDepartment Health and Caring Sciences, Linnaeus University, SE-39182 Kalmar, Sweden.ORCID 0000-0003-2028-6213
Feylyn LewisSchool of Nursing 179, Vanderbilt University School of Nursing, 461 21st Avenue South, Nashville, TN 37240, USA.ORCID 0000-0003-2306-8182
Tom ParkhouseSchool of Psychology, University of Sussex, Falmer, Brighton BN1 9QQ, UK.ORCID 0000-0001-6773-5376
Valentina HlebecFaculty of Social Sciences, University of Ljubljana, 1000 Ljubljana, Slovenia.ORCID 0000-0002-3691-7959
Sara SantiniCentre for Socio-Economic Research on Ageing, IRCCS INRCA-National Institute of Health and Science on Ageing, 60124 Ancona, Italy.ORCID 0000-0003-4705-4631
Renske HoefmanThe Netherlands Institute for Social Research (SCP), Postbus 16164, 2500 BD The Hague, The Netherlands.ORCID 0000-0003-4533-2562
Agnes LeuInstitute for Biomedical Ethics, Science and Medical Faculty, University of Basel, 4001 Basel, Switzerland.ORCID 0000-0002-5451-837X
Saul BeckerFaculty of Health and Education, Manchester Metropolitan University, Manchester M15 6BX, UK.ORCID 0000-0002-7643-5903
Linnaeus University · SEIstituto Nazionale di Riposo e Cura per Anziani · ITManchester Metropolitan University · GBNetherlands Institute for Social Research · NLUniversity of Basel · CHUniversity of Ljubljana · SIUniversity of Sussex · GBVanderbilt University · US

Funding

European Union's Horizon 2020 research and innovation programme No. 754702
6 · The paper itself

Abstract

A child's disability, long-term illness, or mental ill-health is known to affect siblings' health, social life, school engagement, and quality of life. This article addresses a research gap by its focus on young sibling carers and the impact of providing care to a sibling. A cross-national survey study was conducted in 2018-2019 (Italy, the Netherlands, Slovenia, Sweden, Switzerland, the UK) to examine the incidence of adolescent sibling carers, the extent of care they provide, and their self-reported health, well-being, and school situation. The survey was completed by 7146 adolescents, aged 15-17, and 1444 of them provided care to family members with health-related conditions. Out of these, 286 were identified as Sibling Carers and 668 as Parent Carers, while 181 had both sibling(s) and parent(s) with health-related conditions, and thus were identified as Sibling-Parent Carers. Sibling Carers and Sibling-Parent Carers carried out higher levels of caring activities compared to Parent Carers. They reported both positive aspects of caring, such as increased maturity, and negative aspects, such as mental ill-health, impact on schooling and a lack of support. To reduce the negative aspects of a sibling carer role, it is important to recognise them and to implement early preventive measures and formal support.

Indexed as

mental healthquality of lifeschool outcomessibling carersupportwell-beingyoung carer

Identifiers

PMID38338201
PMCPMC10855446
OpenAlexW4391215920

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.