Evidence map›Paper›PMID 38337159›Full record

SynthesisJournal of geriatric psychiatry and neurology2024

A Systematic Review of Dementia Research Priorities.

Manonita Ghosh, Pelden Chejor, Melanie Baker, Davina Porock

Abstract readSystematic Review
In one paragraph

Synthesis in Journal of geriatric psychiatry and neurology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Manonita GhoshSocial Ageing (SAGE) Futures Lab, School of Arts and Humanities, Edith Cowan University, Perth, WA, Australia.
Pelden ChejorCentre for Research in Aged Care, School of Nursing and Midwifery, Edith Cowan University, Perth, WA, Australia.ORCID 0000-0001-6713-7421
Melanie BakerCentre for Research in Aged Care, School of Nursing and Midwifery, Edith Cowan University, Perth, WA, Australia.
Davina PorockCentre for Research in Aged Care, School of Nursing and Midwifery, Edith Cowan University, Perth, WA, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionPatient involvement is a critical component of dementia research priority-setting exercises to ensure that research benefits are relevant and acceptable to those who need the most. This systematic review synthesises research priorities and preferences identified by people living with dementia and their caregivers.

methodsGuided by Joanna Briggs Institute methodology, and Preferred Reporting Items for Systematic Reviews and Meta-Analyses framework, we conducted a systematic search in five electronic databases: CINAHL, Medline, PsycINFO, Web of Science and Scopus. The reference lists of the included studies were also manually searched. We combined quantitative and qualitative data for synthesis and descriptive thematic analysis.

resultsEleven studies were included in this review. Findings are grouped into four main categories: Increase in knowledge, education, and awareness; Determining the cause; Sustainability of care; and Cure of dementia and related conditions.

conclusionThere is a need to respond to the stigma associated with dementia, which limits access to care and the quality of life for both people living with dementia and their caregivers. We need to work on changing public, private and workplace attitudes about dementia and encourage supporting and participating in dementia research. Future research should involve people living with dementia and their primary caregivers from culturally and linguistically diverse communities in priority-setting exercises.

Indexed as

DementiaBiomedical ResearchCaregiversHumansResearchalzheimer’s diseasebehavioural disturbancescognitive declinedementiageriatricshealth services research

Identifiers

PMID38337159
PMCPMC11317016

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.