ArticleDevelopmental medicine and child neurology2024
Impact of disability-based discrimination in healthcare on parents of children with medical complexity.
Article in Developmental medicine and child neurology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
3 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Family Caregivers' Experiences of Services for Children With Medical Complexity: A Systematic Review and Qualitative Evidence Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Primary care services role in supporting families of children or adolescents with disabilities or neurodevelopmental disorders.Revista da Escola de Enfermagem da U S P · 2026Review
- Impact of disability-based discrimination in healthcare on parents of children with medical complexity.Developmental medicine and child neurology · 2024Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
aimTo qualitatively assess the impact of disability-based discrimination in healthcare on the parents of children with medical complexity (CMC).
methodIn this qualitative study, we conducted in-depth, semi-structured interviews with the parents of CMC. Data collection and analysis occurred iteratively; constant comparison methods were used to identify themes describing the impact of disability-based discrimination in pediatric healthcare on the parents of CMC.
resultsThirty participants from 15 US states were interviewed. Four themes were developed regarding the impact of disability-based discrimination in healthcare on parents. The themes were: (1) discrimination leads to a loss of trust in healthcare providers; (2) discrimination increases the burden of caregiving; (3) discrimination impacts parental well-being; and (4) racism and poverty-based discrimination amplifies disability-based discrimination.
interpretationThe experience of discrimination toward their child results in loss of trust and therapeutic relationship between provider and parent, causes increased burden to the family, and contributes to decreased parental well-being. These experiences are magnified in minoritized families and in families perceived to have a lower socioeconomic status based on insurance type.
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Registered trials
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