Evidence map›Paper›PMID 38325342›Full record

ArticleFetal diagnosis and therapy2024

Development and Validation of a Scale to Measure Person-Centered Care in Fetal Care Centers.

Abigail Wilpers, Marney White, Mary T Austin, Mert Ozan Bahtiyar, Katie Francis, Stephen P Emery, Diane Wall, Lonnie Somers, Charlotte Wool

Abstract readValidation Study
In one paragraph

Article in Fetal diagnosis and therapy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Interpersonal relationships after prenatal diagnosis of congenital heart disease: Social stressors and supports.Journal of perinatology : official journal of the California Perinatal Association · 2025
    Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Abigail WilpersDepartment of Family and Community Health, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, USA.
Marney WhiteDepartment of Psychiatry, Yale School of Medicine, New Haven, Connecticut, USA.
Mary T AustinDepartment of Pediatric Surgery, McGovern Medical School, University of Texas Health Science Center, Houston, Texas, USA.
Mert Ozan BahtiyarDepartment of Obstetrics, Gynecology, and Reproductive Sciences, Yale School of Medicine, New Haven, Connecticut, USA.
Katie FrancisSt. Louis Fetal Care Institute, SSM Health Cardinal Glennon Children's Hospital, St. Louis, Missouri, USA.
Stephen P EmeryDepartment of Obstetrics, Gynecology, and Reproductive Sciences, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.
Diane WallDepartment of Obstetrics, Gynecology, and Reproductive Sciences, Yale School of Medicine, New Haven, Connecticut, USA.
Lonnie SomersFetal Health Foundation, Littleton, Colorado, USA.
Charlotte WoolSchool of Nursing and Health Professionals, York College of Pennsylvania, Philadelphia, Pennsylvania, USA.

Funding

NRSA Training CoreTL1TR001864 · NCATS · YALE UNIVERSITY · PI CANTLEY, LLOYD G, EDELMAN, E. JENNIFER · 2016 to 2025
$9.9M
NCATS NIH HHS TL1 TR001864
6 · The paper itself

Abstract

introductionFetal care centers (FCCs) in the USA lack a standardized instrument to measure person-centered care. This study aimed to develop and validate the Person-Centered Care in Fetal Care Centers (PCC-FCC) Scale.

methodsInitial items were developed based on literature and input from clinicians and former patients. A Delphi study involving 16 experts was conducted to validate the content and construct. Through three rounds of online questionnaires using open-ended questions and Likert scales, consensus on item clarity and relevancy was established. The resulting items were then piloted with former fetal care center patients via a web-based survey. The instrument's reliability and validity were validated using Cronbach's α and exploratory factor analysis, respectively. Concurrent validity was assessed by comparing scores with the Revised Patient Perception of Patient-Centeredness (PPPC-R) Questionnaire.

results258 participants completed the 48-item pilot PCC-FCC survey, categorized into six domains. Factor analysis yielded a 2-factor, 28-item scale. Internal consistency of the final scale had good reliability (α = 0.969). Data supported content, construct, and concurrent validity.

conclusionThe PCC-FCC Scale is a reliable and valid measure of person-centered care in U.S. FCCs. It can be used to enhance services and begin connecting person-centered care to maternal-child health outcomes.

Indexed as

Delphi TechniquePatient-Centered CareAdultFemaleHumansMaleMiddle AgedPregnancyPrenatal CareReproducibility of ResultsSurveys and QuestionnairesUnited StatesDelphi studyFetal care centerFetal diagnosisPerinatal careReproductive healthScale development

Identifiers

PMID38325342
PMCPMC11147688

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.