Evidence map›Paper›PMID 38324735›Full record

ArticleJournal of pediatric psychology2024

Understanding the impacts of chronic pain on autistic adolescents and effective pain management: a reflexive thematic analysis adolescent-maternal dyadic study.

Abbie Jordan, Amelia Parchment, Jeremy Gauntlett-Gilbert, Abigail Jones, Bethany Donaghy, Elaine Wainwright, Hannah Connell, Joseline Walden, David J Moore

Open access · hybridAbstract read
In one paragraph

Article in Journal of pediatric psychology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
11.1field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 10 citations in OpenAlex.

  1. Review
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  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 6 institutions in 1 country.

Abbie JordanDepartment of Psychology, University of Bath, Bath, United Kingdom.ORCID 0000-0003-1595-5574
Amelia ParchmentNIHR Applied Research Collaboration Greater Manchester, University of Manchester, Manchester, United Kingdom.
Jeremy Gauntlett-GilbertBath Centre for Pain Services, Royal United Hospitals Bath, Bath, United Kingdom.ORCID 0000-0002-8461-4151
Abigail JonesDepartment of Psychology, University of Bath, Bath, United Kingdom.
Bethany DonaghyResearch Centre for Brain & Behaviour, Liverpool John Moores University, Liverpool, United Kingdom.
Elaine WainwrightCentre for Pain Research, University of Bath, Bath, United Kingdom.ORCID 0000-0001-5678-4412
Hannah ConnellBath Centre for Pain Services, Royal United Hospitals Bath, Bath, United Kingdom.
Joseline WaldenDepartment of Psychology, University of Bath, Bath, United Kingdom.
David J MooreResearch Centre for Brain & Behaviour, Liverpool John Moores University, Liverpool, United Kingdom.
University of Bath · GBLiverpool John Moores University · GBRoyal United Hospital · GBUniversity of Aberdeen · GBUniversity of Manchester · GBUniversity of the West of England · GB

Funding

Donated Funds CommitteeDonated Funds Committee of the Royal United Hospitals Bath NHS Foundation TrustNHS Foundation TrustResearch Capacity FundingRoyal United Hospitals BathRoyal United Hospitals Bath NHS Trust
6 · The paper itself

Abstract

objectiveSensory elements are core features in chronic pain and autism, yet knowledge of the pain experience in autistic adolescents is limited. Little is known regarding how autistic adolescents experience chronic pain, manage their pain and perceive psychological treatment for their chronic pain.

methodsTen autistic adolescents (6 female, 3 male, and 1 self-identified as agender) with chronic pain and their mothers (n = 10) participated in semistructured interviews concerning their perceptions of living with chronic pain. Participants were recruited from U.K. pain management services. According to preference, interviews were conducted individually (n = 10) or dyadically (n = 10 participants across 5 dyads). Data were analyzed using inductive reflexive thematic analysis.

resultsTwo themes were generated. Theme 1, "overstimulated and striving for control" described how adolescents' experience of heightened sensitivity enhanced adolescents' levels of anxiety and subsequent pain, illustrating a reciprocal relationship between anxiety, pain, and sensory elements. Theme 2, "not everyone fits the mold" captured how autistic adolescents positioned themselves as distinct from others due to the unique nature of being autistic and living with pain. This sense of difference negatively impacted adolescents' ability to engage with and benefit from the standard treatment for chronic pain.

conclusionsFindings suggest that autistic adolescents living with pain experience pain and face barriers to effective pain treatment. Our results identify the need for educational resources to facilitate clinicians to better understand the experience of autistic adolescents living with pain. In turn, such understanding may improve treatment and outcomes in this population.

Indexed as

Autistic DisorderChronic PainAdolescentAnxietyFemaleHumansMalePain Managementadolescentsautismpainparentsqualitative

Identifiers

PMID38324735
PMCPMC10954305
OpenAlexW4391592201

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.