Evidence map›Paper›PMID 38321424›Full record

ArticleBMC nursing2024

Family members' experiences of everyday caregiving for a family member living with Parkinson's disease: a qualitative thematic analysis study.

Zvonka Fekonja, Nadja Irgolič, Dominika Vrbnjak

Abstract read
In one paragraph

Article in BMC nursing, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Review
  5. Article
  6. A qualitative study of the discharge planning needs of lung cancer patients and their caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Zvonka FekonjaFaculty of Health Sciences, University of Maribor, Žitna Ulica 15, 2000, Maribor, SI, Slovenia. zvonka.fekonja@um.si.ORCID http://orcid.org/0000-0002-4224-8843
Nadja IrgoličDom Danice Vogrinec Maribor, Unit Tabor, Čufarjeva Cesta 9, 2000, Maribor, SI, Slovenia.
Dominika VrbnjakFaculty of Health Sciences, University of Maribor, Žitna Ulica 15, 2000, Maribor, SI, Slovenia.ORCID http://orcid.org/0000-0003-4952-078X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIn the daily life of individuals living with Parkinson's disease, their loved ones are crucial. Adapting family members to the patient's condition, support in providing care, and psychosocial adaptations is essential.

aimTo explore family members' perception of everyday caregiving for a family member living with Parkinson's disease and to describe their role in the care and everyday life.

methodsIn a descriptive, qualitative thematic analysis study, semi-structured interviews were conducted with ten people between the ages of 20 and 70, the closest family members of people living with Parkinson's disease. The analysis of the collected data was carried out using thematic analysis.

resultsWe generated the main theme: "Living with a family member with Parkinson's disease", with associated secondary-level sub-themes: "Response", "Change", "Care", and "Support". Family members of individuals living with Parkinson's disease frequently encounter similar life situations. The most notable transformation in their daily lives primarily revolves around adapting to various activities.

conclusionsFamily members are the ones who most often take on the role of caregiver and provide help to their loved ones. Many of them accept the disease as a part of everyday life and learn to live with it. It is of fundamental importance that we offer family members the necessary support, knowledge, and involvement in holistic treatment and care.

Indexed as

CaregiversExperiencesFamilyParkinson’s diseasePatient carePatients

Identifiers

PMID38321424
PMCPMC10845758

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.