ArticleJournal of obstetric, gynecologic, and neonatal nursing : JOGNN2024
Early Experiences of Parents of Children With Craniofacial Microsomia.
Article in Journal of obstetric, gynecologic, and neonatal nursing : JOGNN, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
3 citing papers in PubMed, 8 citations in OpenAlex.
- Embarking on a Treatment Journey: Experiences of Caregivers of Young Children With Craniofacial Microsomia.The Journal of craniofacial surgery · 2025Article
- Psychosocial Experiences of Spanish-Speaking Parents of Children With Craniofacial Microsomia.The Journal of craniofacial surgery · 2025Article
- "I can't provide what my child needs": Early feeding experiences of caregivers of children with craniofacial microsomia.Journal of pediatric nursingArticle
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
objectiveTo describe the early health care experiences of parents of children with craniofacial microsomia (CFM), a congenital diagnosis often identified at birth.
designQualitative descriptive.
settingHomes of participants.
participantsParents of 28 children with CFM from across the United States.
methodsWe interviewed participants (27 mothers individually and one mother and father together) via telephone or teleconference and used reflexive thematic analysis to derive themes that represented early health care experiences of parents of children with CFM.
resultsParticipants' narratives included detailed recounting of their birth and early care experiences. We identified two overarching themes. The first overarching theme, Stressors, included four subthemes that represented difficulties related to emotional reactions and negative experiences with health care providers. The second overarching theme, Finding Strength, included four subthemes that represented participants' positive adjustment to stressors through independent information seeking about CFM, adaptive coping, positive experiences with health care providers, and drawing on external supports.
conclusionParticipants often described early experiences as challenging. Findings have implications for improving early care, including increasing open and supportive communication by health care professionals, expanding access to CFM information, screening for mental health concerns among parents, strengthening coping among parents, and linking families to resources such as reliable online CFM information and early intervention programs.
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Registered trials
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