Evidence map›Paper›PMID 38317155›Full record

ArticleBMC public health2024

Involving lived experience in regional efforts to address gambling-related harms: going beyond 'window dressing' and 'tick box exercises'.

Catherine L Jenkins, Thomas Mills, James Grimes, Colin Bland, Paula Reavey, Jane Wills, Susie Sykes

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC public health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. 'I Battle With This Gambling Addiction Every Day'. Learning From Lived Experiences of Recovery to Guide Gambling Harm Prevention Strategies.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  3. Article
  4. Article
  5. Review
  6. The Importance of Lived Experience: A Scoping Review on the Value of Patient and Public Involvement in Health Research.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Catherine L JenkinsInstitute of Health and Social Care, London South Bank University, London, UK. jenkinc8@lsbu.ac.uk.
Thomas MillsInstitute of Health and Social Care, London South Bank University, London, UK.
James GrimesInstitute of Health and Social Care, London South Bank University, London, UK.
Colin BlandBetKnowMore, London, UK.
Paula ReaveySchool of Applied Sciences, London South Bank University, London, UK.
Jane WillsInstitute of Health and Social Care, London South Bank University, London, UK.
Susie SykesInstitute of Health and Social Care, London South Bank University, London, UK.

Funding

National Institute for Health and Care Research 131568; 135398
6 · The paper itself

Abstract

backgroundLived Experience (LE) involvement has been shown to improve interventions across diverse sectors. Yet LE contributions to public health approaches to address gambling-related harms remain underexplored, despite notable detrimental health and social outcomes linked to gambling. This paper analyses the potential of LE involvement in public health strategy to address gambling-related harms. It focuses on the example of a UK city-region gambling harms reduction intervention that presented multiple opportunities for LE input.

methodsThree focus groups and 33 semi-structured interviews were conducted to hear from people with and without LE who were involved in the gambling harms reduction intervention, or who had previous experience of LE-informed efforts for addressing gambling-related harms. People without LE provided reflections on the value and contributions of others' LE to their work. Data analysis combined the Framework Method with themes developed inductively (from people's accounts) and deductively (from the literature, including grey literature).

resultsFour themes were identified: (1) personal journeys to LE involvement; (2) the value added by LE to interventions for addressing gambling-related harms; (3) emotional impacts on people with LE; and (4) collective LE and diverse lived experiences. Two figures outlining LE involvement specific to gambling harms reduction in the UK, where public health efforts aimed at addressing gambling-related harms coexist with industry-funded programmes, are proposed.

conclusionsIntegrating a range of LE perspectives in a public health approach to gambling harms reduction requires local access to involvement for people with LE via diverse routes that are free from stigma and present people with LE with options in how they can engage and be heard in decision-making, and how they operate in relation to industry influence. Involving LE in gambling harms reduction requires enabling people to develop the affective and critical skills necessary to navigate complex emotional journeys and a challenging commercial and policy environment.

Indexed as

GamblingBandagesExercise TherapyFocus GroupsHumansPublic HealthGambling-related harmsHarms reductionLived experiencePublic engagementPublic involvement

Identifiers

PMID38317155
PMCPMC10840217

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.