ArticleKidney international reports2024
Validation of a Core Patient-Reported Outcome Measure for Life Participation in Kidney Transplant Recipients: the SONG Life Participation Instrument.
Article in Kidney international reports, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 17 citations in OpenAlex.
- Evaluating construct validity of the PRO-Kid life participation tool for children living with chronic kidney disease.Pediatric nephrology (Berlin, Germany) · 2026Article
- Validation of the Standardized Outcomes in Nephrology-Life Participation Instrument in People with CKD.Kidney360 · 2026Article
- Improving quality of life in older dialysis patients: the case for broader functional assessment.Clinical kidney journal · 2026Article
- Validation of the Standardized Outcomes in Nephrology - Life Participation (SONG-LP) Instrument in People Receiving Dialysis.Kidney international reports · 2026Article
- French Translation and Psychometric Evaluation of the Standardized Outcomes in Nephrology Life Participation Instrument Among Kidney Transplant Recipients.Kidney international reports · 2026Article
- Impact of CKD on Life Participation in Latin America.Kidney international reports · 2026Article
- Patient-reported Outcome Measures in Solid Organ Transplant Recipients: Current use, Challenges, and Recommendations for Future use.Transplantation · 2026Review
- Critically Important Cancer Outcomes to Report in Kidney Transplant Trials.Kidney international reports · 2025Article
- Assessing Social Participation Among Kidney Transplant Recipients Using PROMIS Computer Adaptive Testing.Kidney international reports · 2025Article
- Core Outcome Measure for Life Participation in Patients with CKD: Standardized Outcomes in Nephrology Workshops Report.Clinical journal of the American Society of Nephrology : CJASN · 2025Article
- Interventions to Improve Life Participation in Kidney Transplant Recipients: A Systematic Review.Kidney medicine · 2025Review
- Patient-reported outcome measures for life participation in patients with chronic kidney disease: a systematic review.Clinical kidney journal · 2025Article
- Life After Kidney Transplantation: The Time for a New Narrative.Transplant international : official journal of the European Society for Organ Transplantation · 2025Article
- Supportive care in transplantation: A patient-centered care model to better support kidney transplant candidates and recipients.World journal of transplantation · 2024Review
- Patient-Reported Outcomes to Achieve Person-Centered Care for Aging People With Kidney Disease.Seminars in nephrologyReview
Corrections and comments
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Authors and funding
18 authors at 13 institutions in 9 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Introduction: Life participation has been established as a critically important core for trials in kidney transplantation. We aimed to validate a patient-reported outcome measure for life participation in kidney transplant recipients. Methods: A psychometric evaluation of the Standardized Outcomes in Nephrology life participation (SONG-LP) measure was conducted in adult kidney transplant recipients. The measure includes 4 items of life participation (leisure, family, work, and social) each with a 5-point Likert scale. Each item is scored from 0 (never) to 4 (always) and the summary measure score the average of each item. Results: A total of 249 adult kidney transplant recipients from 20 countries participated. The SONG-LP instrument demonstrated internal consistency (Cronbach's α = 0.87; 95% confidence intervals [CI]: 0.83-0.90, baseline) and test-retest reliability over 1 week (intraclass correlation coefficient of 0.62; 95% CI: 0.54-0.70). There was moderate to high correlation (0.65; 95% CI: 0.57-0.72) with the PROMIS Ability to Participate in Social Roles and Activities Short Form 8a that assessed a similar construct, and moderate correlation with measures that assessed related concepts (i.e., EQ5D 0.57; 95% CI: 0.49-0.65), PROMIS Cognitive Functional Abilities Subset Short Form 4a (0.40; 95% CI: 0.29-0.50). Conclusion: The SONG-LP instrument is a simple, internally consistent, reliable measure for kidney transplant recipients and correlates with similar measures. Routine incorporation in clinical trials will ensure consistent and appropriate assessment of life participation for informed patient-centered decision-making.
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Registered trials
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