Evidence map›Paper›PMID 38311602›Full record

ArticleAutism : the international journal of research and practice2024

What are the autism research priorities of autistic adults in Scotland?

Eilidh Cage, Catherine J Crompton, Sarah Dantas, Khiah Strachan, Rachel Birch, Mark Robinson, Stasa Morgan-Appel, Charlie MacKenzie-Nash, Aaron Gallagher, Monique Botha

Open access · hybridAbstract read
In one paragraph

Article in Autism : the international journal of research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.

0numbers the graph read from it
0cells of the map it votes in
27citing papers in PubMed
16.8field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

27 citing papers in PubMed, 50 citations in OpenAlex.

  1. Review
  2. Article
  3. Visual Responsivity in Autism: Measuring Visual Responses in Autistic and Non-Autistic Adults Using Psychophysics, fMRI, and EEG.Autism research : official journal of the International Society for Autism Research · 2026
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  16. 'I feel trapped in my safe clothes': The impact of tactile hyper-sensitivity on autistic adults.Autism : the international journal of research and practice · 2025
    Article
  17. Article
  18. Article
  19. A Tactful Prompt: The Time is Right forPerspectives on behavior science · 2025
    Review
  20. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 3 institutions in 1 country.

Eilidh CageUniversity of Stirling, UK.ORCID 0000-0001-6281-1632
Catherine J CromptonThe University of Edinburgh, UK.ORCID 0000-0001-5280-1596
Sarah DantasUniversity of Stirling, UK.
Khiah StrachanUniversity of Stirling, UK.
Rachel BirchStriving to Transform Autism Research Together - Scotland (STARTS) Network, UK.
Mark RobinsonStriving to Transform Autism Research Together - Scotland (STARTS) Network, UK.
Stasa Morgan-AppelStriving to Transform Autism Research Together - Scotland (STARTS) Network, UK.
Charlie MacKenzie-NashStriving to Transform Autism Research Together - Scotland (STARTS) Network, UK.
Aaron GallagherStriving to Transform Autism Research Together - Scotland (STARTS) Network, UK.
Monique BothaUniversity of Stirling, UK.ORCID 0000-0002-5935-9654
NIHR Research Delivery Network · GBUniversity of Stirling · GBUniversity of Edinburgh · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

lay abstractAlthough research has the potential to improve autistic people's lives, lots of funding goes towards research looking at topics which autistic people say has little impact in their everyday lives. Autistic people's lives can be different depending on where they live, and Scotland is a unique country in many ways. We wanted to find out which topics autistic people in Scotland want to see research on. Our team of autistic and non-autistic researchers (including university-based and community researchers) created a survey where 225 autistic adults rated and ranked the importance of possible research topics and shared their thoughts on what topics mattered to them. The five most important topics were mental health and well-being, identifying and diagnosing autistic people, support services (including healthcare and social care), non-autistic people's knowledge and attitudes and issues impacting autistic women. The three least important topics were genetics or biological aspects of autism, autism treatments/interventions and causes of autism. Our findings indicate that autistic people in Scotland want research to focus on things that matter to their day-to-day lives. Also, the Scottish government says they will be listening to autistic people in their latest policy plans, and we believe that considering autistic people's research priorities is an important part of this. Our findings also add to growing calls for change to happen in how and what autism researchers do research on.

Indexed as

Autistic DisorderAdolescentAdultAgedBiomedical ResearchFemaleHealth Knowledge, Attitudes, PracticeHumansMaleMiddle AgedResearchScotlandSurveys and QuestionnairesYoung Adultadultspolicy

Identifiers

PMID38311602
PMCPMC11401337
OpenAlexW4391536598

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.