ArticleJournal of general internal medicine2024
Patient Experiences Navigating Care Coordination For Long COVID: A Qualitative Study.
Article in Journal of general internal medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Between silence and solutions: a global guideline review of long COVID care and services in Australia.BMC health services research · 2026Pooled it
- "That's not my silo": Navigating fragmented long COVID care in the mid-Atlantic United States.SSM. Qualitative research in health · 2026Article
- Care Pathways and Patient Experiences Among Patients With Post COVID-19 Condition: Study Protocol for a Mixed-Methods Study in Germany.JMIR research protocols · 2026Article
- Outcomes of Patients with Neurocognitive Symptoms Attending a Long COVID Clinic: A Longitudinal Cohort Study.Journal of general internal medicine · 2026Article
- Compassion fatigue, work engagement, and psychological distress in health care workers treating patients with long COVID.PM & R : the journal of injury, function, and rehabilitation · 2025Article
- Primary Care Physicians' Preparedness to Recognize and Evaluate Patients for Long COVID.Journal of general internal medicine · 2025Article
- Living With Long COVID: Everyday Experiences, Health Information Barriers and Patients' Quality of Life.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Assessing the influence of lived-experience experts on healthcare providers in a virtual community of practice: a qualitative study.Frontiers in health services · 2025Article
- Experiences of accessing primary care by those living with long Covid in New Zealand: A qualitative analysis.PloS one · 2025Article
- COVID-19 vaccination perspectives among patients with Long COVID: A qualitative study.Human vaccines & immunotherapeutics · 2024Article
- Using co-design methods to develop new personalised support for people living with Long Covid: The 'LISTEN' intervention.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors.
Funding
Abstract
backgroundLittle is known about how to best evaluate, diagnose, and treat long COVID, which presents challenges for patients as they seek care.
objectiveUnderstand experiences of patients as they navigate care for long COVID.
designQualitative study involving interviews with patients about topics related to seeking and receiving care for long COVID.
participantsEligible patients were at least 18 years of age, spoke English, self-identified as functioning well prior to COVID infection, and reported long COVID symptoms continued to impact their lives at 3 months or more after a COVID infection. APPROACH: Patients were recruited from a post-COVID recovery clinic at an academic medical center from August to September 2022. Interviews were audio-recorded, transcribed, and analyzed using thematic analysis. KEY
resultsParticipants (n=21) reported experiences related to elements of care coordination: access to care, evaluation, treatment, and ongoing care concerns. Some patients noted access to care was facilitated by having providers that listened to and validated their symptoms; other patients reported feeling their access to care was hindered by providers who did not believe or understand their symptoms. Patients reported confusion around how to communicate their symptoms when being evaluated for long COVID, and they expressed frustration with receiving test results that were normal or diagnoses that were not directly attributed to long COVID. Patients acknowledged that clinicians are still learning how to treat long COVID, and they voiced appreciation for providers who are willing to try new treatment approaches. Patients expressed ongoing care concerns, including feeling there is nothing more that can be done, and questioned long-term impacts on their aging and life expectancy.
conclusionsOur findings shed light on challenges faced by patients with long COVID as they seek care. Healthcare systems and providers should consider these challenges when developing strategies to improve care coordination for patients with long COVID.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.