Evidence map›Paper›PMID 38304703›Full record

ArticleCritical care explorations2023

"We Aren't Meant to Go Through the Hardest Parts of Our Lives Alone": Family Experience With Restricted PICU Presence During the COVID-19 Pandemic.

Laurie A Lee, Jennifer R Foster, Dejana Nikitovic, Daniel Garros, Molly J Ryan, Neda Moghadam, Corey Slumkoski, Martha Walls, Janet A Curran, Jamie A Seabrook and 10 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Critical care explorations, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
1.5field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 6 citations in OpenAlex.

  1. Review
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors at 10 institutions in 1 country.

Laurie A LeeDepartment of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Jennifer R FosterDepartment of Pediatric Critical Care, IWK Health, Halifax, NS, Canada.
Dejana NikitovicDepartment of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Daniel GarrosStollery Children's Hospital, Edmonton, AB, Canada.
Molly J RyanDepartment of Pediatric Critical Care, IWK Health, Halifax, NS, Canada.
Neda MoghadamPatient Partner, Department of Pediatric Critical Care, IWK Health, Halifax, NS, Canada.
Corey SlumkoskiPatient Partner, Department of Pediatric Critical Care, IWK Health, Halifax, NS, Canada.
Martha WallsPatient Partner, Department of Pediatric Critical Care, IWK Health, Halifax, NS, Canada.
Janet A CurranIWK Health, Halifax, NS, Canada.
Jamie A SeabrookDepartment of Pediatrics, Western University, London, ON, Canada.
Stacy BurgessIWK Health, Halifax, NS, Canada.
Laura BettsDepartment of Pediatric Critical Care, IWK Health, Halifax, NS, Canada.
Amanda BarclayDepartment of Pediatrics, Faculty of Medicine, University of British Columbia, Vancouver, BC, Canada.
Karen ChoongDepartments of Pediatrics and Critical Care, McMaster University, Hamilton, ON, Canada.
Patricia FontelaDivision of Pediatric Critical Care, Department of Pediatrics, McGill University, Montreal, QC, Canada.
Srinivas MurthyDivision of Critical Care, Department of Pediatrics, University of British Columbia, Vancouver, BC, Canada.
Jessica NicollJaneway Children's Health and Rehabilitation Centre, St. John's, NL, Canada.
Katie O'HearnChildren's Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada.
Anupam SehgalDepartment of Pediatrics, Queen's University, Kingston Health Sciences Centre, Kingston, ON, Canada.
Janice TijssenSchulich School of Medicine and Dentistry, Western University, London, ON, Canada.
Izaak Walton Killam Health Centre · CAUniversity of British Columbia · CAUniversity of Calgary · CAWestern University · CAChildren's Hospital of Eastern Ontario · CADalhousie University · CAJaneway Children's Health and Rehabilitation Centre · CAMcGill University · CAMcMaster University · CAStollery Children's Hospital · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

contextPICUs across Canada restricted family presence (RFP) in response to the COVID-19 pandemic from allowing two or more family members to often only one family member at the bedside. The objective of this study was to describe the experiences and impact of RFP on families of critically ill children to inform future policy and practice. HYPOTHESIS: RFP policies negatively impacted families of PICU patients and caused moral distress. METHODS AND MODELS: National, cross-sectional, online, self-administered survey. Family members of children admitted to a Canadian PICU between March 2020 and February 2021 were invited to complete the survey. RFP-attributable distress was measured with a modified distress thermometer (0-10). Closed-ended questions were reported with descriptive statistics and multivariable linear regression assessed factors associated with RFP-attributable distress. Open-ended questions were analyzed using inductive content analysis.

resultsOf 250 respondents who experienced RFP, 124 (49.6%) were restricted to one family member at the bedside. The median amount of distress that families attributed to RFP policies was 6 (range: 0-10). Families described isolation, removal of supports, and perception of trauma related to RFP. Most families (183, 73.2%) felt that policies were enforced in a way that made them feel valued by PICU clinicians, which was associated with less RFP-attributable distress. Differential impact was seen where families with lower household income indicated higher RFP-attributable distress score (2.35; 95% CI, 0.53-4.17; INTERPRETATIONS AND

conclusionsFamilies of children admitted to PICUs during the COVID-19 pandemic described increased distress, trauma, and removal of supports due to RFP policies. Vulnerable families showed an increased odds of higher distress. Healthcare professionals played an important role in mitigating distress. Allowance of at least two family members at the bedside should be considered for future policy.

Indexed as

COVID-19familyintensive care unitsorganizational policypediatrics

Identifiers

PMID38304703
PMCPMC10833634
OpenAlexW4388021083

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.