ArticleArchives of Iranian medicine2023
Iranian Hydatid Disease Registry: Establishment and Implementation of a Neglected Tropical Disease Registry.
Article in Archives of Iranian medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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The trial behind it
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Who cites it
7 citing papers in PubMed.
- A cost-outcome assessment of dog deworming for echinococcosis control in the Xizang Autonomous Region, China, 2016-2022.PLoS neglected tropical diseases · 2026Article
- Clinical and Radiological Features of a Large Intracranial Hydatid Cyst: A New Case Report.Case reports in infectious diseases · 2026Article
- Hydatid Cyst of the Breast: A Rare Case Report and Literature Review.Clinical case reports · 2025Article
- The patterns of diagnosis approaches, involved organs, and clinical symptoms and signs of hydatid cyst patients: a case series study from Northern Iran.Journal of parasitic diseases : official organ of the Indian Society for Parasitology · 2025Article
- The Management Pathway of Patients with Cystic Echinococcosis in Iran Prior to Definitive Surgical Treatment.The American journal of tropical medicine and hygiene · 2025Article
- From mammary mystery to parasitic surprise: a rare case of primary breast hydatid cyst.BMC infectious diseases · 2024Article
- Environmental contamination with feces of free-roaming dogs and the risk of transmission of Echinococcus and Taenia species in urban regions of southeastern Iran.Parasites & vectors · 2024Article
Corrections and comments
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Authors and funding
22 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCystic echinococcosis (CE) or hydatid disease is a global public health concern which imposes considerable economic costs on the communities in endemic regions. CE surveillance data are not adequately reliable. The present study reports the development and outcomes of a CE registry in Iran.
methodsHydatid Registry (HydatidReg) was initially established as a single-center registry in 2014 after the ethical approval of KMU. Following a call from MoHME to promote registry of different diseases and health outcomes, a call for participation was announced and all the Iranian Universities of Medical Sciences were requested to contribute to the registry. Subsequently, a nation-wide registry of hydatid disease was established in 2016. With a global perspective, HydatidReg joined the European Register of Cystic Echinococcosis (ERCE). A data collection form based on minimum dataset was designed and standard operating procedures (SOPs) were prepared to ensure standardized patient enrolment in the registry. A biobank system with two-dimensional barcoding was established along with HydatidReg for management and organization of biological specimens.
resultsAs of March 2021, a total of 690 patients were enrolled in the registry. HydatidReg registered 362 (17.3%) out of the total 2097 patients enrolled in ERCE. Quality control (QC) of the data demonstrated 91.2% completeness and 80% timeliness. In the biobank, 322 biological specimens from 184 CE patients have been deposited including 70 blood, 96 sera and 156 parasite materials.
conclusionHigh-quality data in the HydatidReg registry provided opportunities for health professionals to improve quality of care and organize meaningful research.
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