Evidence map›Paper›PMID 38300358›Full record

ArticleBreast cancer research and treatment2024

Information needs in breast reconstruction after mastectomy: a qualitative analysis of free-text responses from 2077 women.

Kim Wuyts, Vicki Durston, Lisa Morstyn, Sam Mills, Victoria White

Open access · hybridAbstract read
In one paragraph

Article in Breast cancer research and treatment, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
3.4field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 6 citations in OpenAlex.

  1. Factors influencing decision regret regarding contralateral prophylactic mastectomy in women at high risk of hereditary breast cancer: a cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
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  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

Kim WuytsSchool of Psychology, Faculty of Health, Deakin University, 1 Gheringhap Street, 3220, Geelong, VIC, Australia.
Vicki DurstonBreast Cancer Network Australia, Camberwell, VIC, Australia.
Lisa MorstynBreast Cancer Network Australia, Camberwell, VIC, Australia.
Sam MillsBreast Cancer Network Australia, Camberwell, VIC, Australia.
Victoria WhiteSchool of Psychology, Faculty of Health, Deakin University, 1 Gheringhap Street, 3220, Geelong, VIC, Australia. vicki.white@deakin.edu.au.ORCID http://orcid.org/0000-0001-6619-8484
Breast Cancer Network Australia · AUDeakin University · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFor many, breast reconstruction following mastectomy (BR) forms an integral part of breast cancer survivorship. For those considering BR, provision of information is essential to allow informed decisions. Using free-text responses from a survey of breast cancer survivors, this study aims to understand current gaps in information regarding BR.

methodAt the end of an online survey assessing BR experiences, participants were asked the open-ended question: "Thinking about women who may experience BR in the future, is there anything you think needs to change so that they have a better experience?". Responses were analysed to identify common themes.

results3384 people completed the survey with 2,077 (61%) responding to the open-ended question. Three themes were identified: (1) content of information, (2) managing expectations, and (3) information sources, each associated with multiple subthemes. Information wanted in theme (1) covered a range of topics including BR options, risks, recovery and 'going flat.' Information on BR's psychological impact was also needed, with comments indicating many were not prepared for this. Theme (2) stressed the importance of realistic information about BR outcomes and processes to reduce discrepancies between expectations and experiences. In theme (3), peer insights and photos were important sources of realistic information.

conclusionMultiple gaps exist in BR-related information available to women. BR information needs to be comprehensive, realistic, and provided at the right time to allow informed decision-making. Developing strategies to strengthen existing information provision as well as new resources to fill information gaps might enhance BR experiences.

Indexed as

Breast NeoplasmsMammaplastyMastectomyAdultAgedCancer SurvivorsFemaleHumansMiddle AgedPatient Education as TopicQualitative ResearchSurveys and QuestionnairesBreast cancerBreast reconstructionInformation needsMastectomyQualitative analysesWomen’s experiences

Identifiers

PMID38300358
PMCPMC11063103
OpenAlexW4391431056

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.