ArticlePEC innovation2024
Persons living with dementia and caregivers' communication preferences for receiving a dementia diagnosis.
Article in PEC innovation, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
4 citing papers in PubMed.
- Patient and family perceptions of rural primary care interprofessional memory clinics for diagnosis and management of dementia: a mixed methods study.BMC health services research · 2025Article
- Culturally sensitive CLEAR guidelines on disclosing and communicating a diagnosis of dementia.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Family caregiving in research and practice: Editorial - PEC innovation.PEC innovation · 2025Article
- "It seems like a never-ending job": voices of female caregivers of older adults in the rural communities.Frontiers in public health · 2025Article
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objective: As the number of individuals diagnosed with dementia increases, so does the need to understand the preferences of persons living with dementia (PLWD) and caregivers for how clinicians can deliver a dementia diagnosis effectively, which can be a difficult process. This study describes the diagnostic communication preferences of PLWD and caregivers. Methods: We conducted semi-structured individual phone interviews with two groups: PLWD who were diagnosed in the past two years ( Results: The groups' communication preferences were largely similar. Data were analyzed thematically into five themes: Conclusion: Participants wanted clear communication, information, and support, but differed in some details (e.g. the language used to describe the diagnosis and the amount/type of desired information). Clinicians can apply general principles but will need to tailor them to individual preferences of PLWD and caregivers. Innovation: Limited research has elicited PLWD and caregivers' communication preferences for receiving dementia diagnoses, particularly through an individualized data collection method allowing for richer descriptions and deeper understanding.
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Registered trials
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