Evidence map›Paper›PMID 38296304›Full record

ArticleBMJ open2024

Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design study in UK mental health services.

Paul Marshall, John Barbrook, Grace Collins, Sheena Foster, Zoe Glossop, Clare Inkster, Paul Jebb, Rose Johnston, Steven H Jones, Hameed Khan and 9 more

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
2.5field-weighted citation impact, top 12% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 3 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors at 6 institutions in 3 countries.

Paul MarshallSpectrum Centre for Mental Health Research, Division of Health Research, Lancaster University, Lancaster, UK p.marshall4@lancaster.ac.uk.ORCID 0000-0002-3913-3359
John BarbrookLancaster University Library, Lancaster University, Lancaster, UK.
Grace CollinsFreelance participatory artist, Lancaster, UK.
Sheena FosterSpectrum Centre for Mental Health Research, Division of Health Research, Lancaster University, Lancaster, UK.
Zoe GlossopSpectrum Centre for Mental Health Research, Division of Health Research, Lancaster University, Lancaster, UK.ORCID 0000-0002-6151-4860
Clare InksterHealth Education England North West, Manchester, UK.
Paul JebbPatient Experience, Engagement & Safeguarding, Lancashire and South Cumbria NHS Foundation Trust, Preston, Lancashire, UK.
Rose JohnstonSpectrum Centre for Mental Health Research, Division of Health Research, Lancaster University, Lancaster, UK.
Steven H JonesSpectrum Centre for Mental Health Research, Division of Health Research, Lancaster University, Lancaster, UK.
Hameed KhanSpectrum Centre for Mental Health Research, Division of Health Research, Lancaster University, Lancaster, UK.
Christopher LodgeSpectrum Centre for Mental Health Research, Division of Health Research, Lancaster University, Lancaster, UK.
Karen MachinIndependent survivor researcher, Lancaster, UK.
Erin MichalakDepartment of Psychiatry, The University of British Columbia, Vancouver, British Columbia, Canada.
Sarah PowellLancaster Medical School, Lancaster University, Lancaster, UK.ORCID 0000-0002-3509-5789
Samantha RussellSpectrum Centre for Mental Health Research, Division of Health Research, Lancaster University, Lancaster, UK.
Jo Rycroft-MaloneFaculty of Health and Medicine, Lancaster University, Lancaster, UK.
Mike SladeInstitute of Mental Health, School of Health Sciences, University of Nottingham, Nottingham, UK.
Lesley WhittakerPatient Experience, Engagement & Safeguarding, Lancashire and South Cumbria NHS Foundation Trust, Preston, Lancashire, UK.
Fiona LobbanSpectrum Centre for Mental Health Research, Division of Health Research, Lancaster University, Lancaster, UK.
Mental Health Research UK · GBLancaster University · GBLancashire Care NHS Foundation Trust · GBHealth Education North West · GBUniversity of British Columbia · CAUniversity of Nottingham · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveLiving Library events involve people being trained as living 'Books', who then discuss aspects of their personal experiences in direct conversation with attendees, referred to as 'Readers'. This study sought to generate a realist programme theory and a theory-informed implementation guide for a Library of Lived Experience for Mental Health (LoLEM).

designIntegrated realist synthesis and experience-based co-design.

settingTen online workshops with participants based in the North of England.

participantsThirty-one participants with a combination of personal experience of using mental health services, caring for someone with mental health difficulties and/or working in mental health support roles.

resultsDatabase searches identified 30 published and grey literature evidence sources which were integrated with data from 10 online co-design workshops conducted over 12 months. The analysis generated a programme theory comprising five context-mechanism-outcome (CMO) configurations. Findings highlight how establishing psychological safety is foundational to productive Living Library events (CMO 1). For Readers, direct conversations humanise others' experiences (CMO 2) and provide the opportunity to flexibly explore new ways of living (CMO 3). Through participation in a Living Library, Books may experience personal empowerment (CMO 4), while the process of self-authoring and co-editing their story (CMO 5) can contribute to personal development. This programme theory informed the co-design of an implementation guide highlighting the importance of tailoring event design and participant support to the contexts in which LoLEM events are held.

conclusionsThe LoLEM has appeal across stakeholder groups and can be applied flexibly in a range of mental health-related settings. Implementation and evaluation are required to better understand the positive and negative impacts on Books and Readers. TRIAL REGISTRATION NUMBER: PROSPERO CRD42022312789.

Indexed as

Mental HealthMental Health ServicesEmpowermentEnglandHumansQualitative ResearchMENTAL HEALTHQUALITATIVE RESEARCHSocial Support

Identifiers

PMID38296304
PMCPMC10831458
OpenAlexW4391383595

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.