ArticleJournal of perinatology : official journal of the California Perinatal Association2024
Identifying barriers and facilitators to care for infants with bronchopulmonary dysplasia after NICU discharge: a prospective study of parents and clinical stakeholders.
Article in Journal of perinatology : official journal of the California Perinatal Association, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed, 5 citations in OpenAlex.
- Engaging families to improve high-risk infant follow-up participation: a mixed methods study.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Parent understanding and satisfaction with NICU discharge for infants with medical complexity: a scoping review of discharge instruction tools.BMC pediatrics · 2026Article
- Parent Understanding and Satisfaction with NICU Discharge for Infants with Medical Complexity: A Scoping Review of Discharge Instruction Tools.Research square · 2026Article
- BronQ Family: assessing the long-term impact of Bronchopulmonary Dysplasia on affected families' health-related quality of life - protocol of a multi-country study.BMJ paediatrics open · 2026Article
- Outcomes of extremely preterm infants with bronchopulmonary dysplasia: a retrospective cohort study.Scientific reports · 2025Article
- Lack of Parental Visitation as a Symptom, Not a Diagnosis: The Impact of Social Drivers of Health in the NICU.NeoReviews · 2025Article
- Impact of systematic screening for social determinants of health in a level IV neonatal intensive care unit.Research square · 2024Article
- Synthesizing Interest-holder Perspectives and Evidence-based Potentially Better Practices to Improve High-risk Infant Follow-through Care Quality.Pediatric quality & safetyArticle
Corrections and comments
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Authors and funding
6 authors at 1 institution in 1 country.
Funding
Abstract
objectiveUnderstand barriers and facilitators to follow-up care for infants with bronchopulmonary dysplasia (BPD).
methodsQualitative study of parents and clinical stakeholders caring for infants with BPD. The interview guide was developed by a mother of a former 23-week preterm infant, neonatologist, pulmonologist, nurse, and qualitative researcher. Purposive sampling obtained a heterogenous sociodemographic and professional cohort. Subjects discussed their experience with BPD, barriers to care, caregiver quality of life and health education. Interviews were audio-recorded, transcribed and coded. Thematic analysis was used.
resultsEighteen parents and 20 stakeholders completed interviews. Family-level themes included pragmatic barriers like transportation being multi-faceted; and caregiving demands straining mental health. System-level themes included caregiver education needing to balance immediate caregiving activities with future health outcomes; and integrating primary care, specialty, and community supports.
conclusionsIndividual and system barriers impact follow-up for infants with BPD. This conceptual framework can be used to measure and improve care.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.