Evidence map›Paper›PMID 38277196›Full record

ArticleSexual and reproductive health matters2023

Translating the consent form is the tip of the iceberg: using cognitive interviews to assess the barriers to informed consent in South African health facilities.

Nirvana Pillay, Nobukhosi Ncube, Kearabetswe Moopelo, Gaolatlhe Mothoagae, Olivia Welte, Manape Shogole, Nasiphi Gwiji, Lesley Scott, Noma Moshani, Nicki Tiffin and 6 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Sexual and reproductive health matters, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
2.6field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 6 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors at 5 institutions in 4 countries.

Nirvana PillaySenior Lecturer, Department of Sociology, University of the Witwatersrand, Johannesburg, South Africa; Director, Sarraounia Public Health Trust, 20 4th Avenue, Parktown North, Johannesburg, 2193, South Africa. Correspondence: Nirvana.Pillay@wits.ac.za.ORCID 0000-0003-1922-5368
Nobukhosi NcubeSocial Scientist, Sarraounia Public Health Trust, Johannesburg, South Africa.
Kearabetswe MoopeloSocial Scientist, Sarraounia Public Health Trust, Johannesburg, South Africa.
Gaolatlhe MothoagaeSocial Scientist, Sarraounia Public Health Trust, Johannesburg, South Africa.
Olivia WelteSocial Scientist, School of Public Health and Family Medicine, University of Cape Town, Cape Town, South Africa.
Manape ShogoleSocial Scientist, Sarraounia Public Health Trust, Johannesburg, South Africa.
Nasiphi GwijiSocial Scientist, School of Public Health and Family Medicine, University of Cape Town, Cape Town, South Africa.
Lesley ScottSchool of Public Health, University of Cape Town, Cape Town, South Africa.
Noma MoshaniSocial Scientist, School of Public Health, University of Cape Town, Cape Town, South Africa.
Nicki TiffinProfessor, Life Sciences Building, South African Bioinformatics Institute, University of the Western Cape, Bellville, South Africa.
Andrew BoulleProfessor, School of Public Health, University of Cape Town, Cape Town, South Africa.
Frances GriffithsProfessor, Warwick Medical School, UK; Professor, Centre for Health Policy, School of Public Health, University of the Witwatersrand, Johannesburg, South Africa.
Lee FairlieDirector of Maternal and Child Health, Wits RHI, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa.
Ushma MehtaAssociate Professor, School of Public Health, University of Cape Town, Cape Town, South Africa.
Amnesty LeFevreAssociate Professor, School of Public Health, University of Cape Town, Cape Town, South Africa.
Kerry ScottIndependent research consultant, Toronto, Canada; Associate Faculty, Johns Hopkins School of Public Health, Baltimore, MD, USA.
University of Cape Town · ZAEducation Trust · USUniversity of the Witwatersrand · ZABioinformatics Institute · RUJohns Hopkins University · US

Funding

Medical Research Council MC_PC_22007Medical Research Council MC_PC_MR/T037733/1
6 · The paper itself

Abstract

The increasing digitisation of personal health data has led to an increase in the demand for onward health data. This study sought to develop local language scripts for use in public sector maternity clinics to capture informed consent for onward health data use. The script considered five possible health data uses: 1. Sending of general health information content via mobile phones; 2. Delivery of personalised health information via mobile phones; 3. Use of women's anonymised health data; 4. Use of child's anonymised health data; and 5. Use of data for recontact. Qualitative interviews (

Indexed as

Consent FormsInformed ConsentAmbulatory Care FacilitiesChildCognitionFemaleHumansPregnancySouth Africadata useinformed consentlanguagematernal healthpublic health

Identifiers

PMID38277196
PMCPMC10823893
OpenAlexW4391251921

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.