Evidence map›Paper›PMID 38275095›Full record

ArticleAge and ageing2024

Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers.

Sanna Read, Ben Hicks, Emily Budden, Jacob Douglass, Amanda Grahamslaw, Elena Herrero, Gregory Joseph, Christine Kirkup, Martha Pusey, Alice Russell and 24 more

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Age and ageing, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
4.2field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 11 citations in OpenAlex.

  1. Article
  2. Volunteering of Former Caregivers: A Pilot Intervention Study in the Chinese American Community.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
    Article
  3. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

34 authors at 12 institutions in 4 countries.

Sanna ReadCare Policy and Evaluation Centre, London School of Economics and Political Science, London, UK.
Ben HicksBrighton and Sussex Medical School, Centre for Dementia Studies, University of Sussex, Brighton, UK.
Emily BuddenSussex Partnership NHS Foundation Trust, Worthing, UK.
Jacob DouglassGateshead Health NHS Foundation Trust, Gateshead, UK.
Amanda GrahamslawGateshead Health NHS Foundation Trust, Gateshead, UK.
Elena HerreroSouth London and Maudsley NHS Foundation Trust, London, UK.
Gregory JosephSouth London and Maudsley NHS Foundation Trust, London, UK.
Christine KirkupGateshead Health NHS Foundation Trust, Gateshead, UK.
Martha PuseySussex Partnership NHS Foundation Trust, Worthing, UK.
Alice RussellSussex Partnership NHS Foundation Trust, Worthing, UK.
Harsharon SondhSouth London and Maudsley NHS Foundation Trust, London, UK.
Sharon SondhSouth London and Maudsley NHS Foundation Trust, London, UK.
Bryony StoreyGateshead Health NHS Foundation Trust, Gateshead, UK.
Georgia TowsonSussex Partnership NHS Foundation Trust, Worthing, UK.
Kate BaxterSocial Policy Research Unit, Faculty of Social Sciences, University of York, York, UK.
Yvonne BirksSocial Policy Research Unit, Faculty of Social Sciences, University of York, York, UK.
Carol BrayneCambridge Public Health, University of Cambridge, Cambridge, UK.
Carmen ColcloughSchool of Psychology, University of Sussex, Brighton, UK.
Margaret DangoorCare Policy and Evaluation Centre, London School of Economics and Political Science, London, UK.
Josie DixonCare Policy and Evaluation Centre, London School of Economics and Political Science, London, UK.ORCID 0000-0003-4772-6450
Paul DonaghyKings College London, Institute of Psychiatry, London, UK.
Kate GridleySocial Policy Research Unit, Faculty of Social Sciences, University of York, York, UK.
Peter R HarrisSchool of Psychology, University of Sussex, Brighton, UK.
Bo HuCare Policy and Evaluation Centre, London School of Economics and Political Science, London, UK.ORCID 0000-0002-5256-505X
Derek KingCare Policy and Evaluation Centre, London School of Economics and Political Science, London, UK.ORCID 0000-0002-2408-4558
Martin KnappCare Policy and Evaluation Centre, London School of Economics and Political Science, London, UK.
Eleanor MilesSchool of Psychology, University of Sussex, Brighton, UK.
Christoph MuellerKings College London, Institute of Psychiatry, London, UK.ORCID 0000-0001-9816-1686
Rotem PerachSchool of Psychology, University of Sussex, Brighton, UK.
Louise RobinsonPopulation Health Sciences Institute, Newcastle University, Newcastle, UK.
Jennifer RustedSchool of Psychology, University of Sussex, Brighton, UK.
Alan J ThomasInstitute for Ageing, Newcastle University, Newcastle, UK.
Raphael WittenbergCare Policy and Evaluation Centre, London School of Economics and Political Science, London, UK.
Sube BanerjeeFaculty of Health, University of Plymouth, Plymouth, UK.
London School of Economics and Political Science · GBUniversity of Sussex · GBGateshead Health NHS Foundation Trust · GBSouth London and Maudsley NHS Foundation Trust · GBSussex Partnership NHS Foundation Trust · GBSocial Policy Research Associates (United States) · USKing's College - North Carolina · USBrighton and Sussex Medical School · GBNewcastle Hospitals - Campus for Ageing and Vitality · GBNewcastle University · GBUniversity of Cambridge · GBUniversity of Plymouth · GB

Funding

Medical Research Council MR/W000229/1
6 · The paper itself

Abstract

introductionFew studies have longitudinally mapped quality of life (QoL) trajectories of newly diagnosed people with dementia and their carers, particularly during coronavirus disease-2019 (COVID-19).

methodsIn a UK cohort study, 261 newly diagnosed people with dementia and 206 family carers were assessed prior to the pandemic (July 2019-March 2020), followed up after the first lockdown (July-October 2020) and then again a year and 2 years later. Latent growth curve modelling examined the level and change of QoL over the four time-points using dementia-specific QoL measures (DEMQOL and C-DEMQOL).

resultsDespite variations in individual change scores, our results suggest that generally people with dementia maintained their QoL during the pandemic and experienced some increase towards the end of the period. This contrasted with carers who reported a general deterioration in their QoL over the same period. 'Confidence in future' and 'Feeling supported' were the only carer QoL subscales to show some recovery post-pandemic. DISCUSSION: It is positive that even during a period of global disruption, decline in QoL is not inevitable following the onset of dementia. However, it is of concern that carer QoL declined during this same period even after COVID-19 restrictions had been lifted. Carers play an invaluable role in the lives of people with dementia and wider society, and our findings suggest that, post-pandemic, they may require greater support to maintain their QoL.

Indexed as

COVID-19DementiaCaregiversCohort StudiesCommunicable Disease ControlHumansPandemicsQuality of LifecarerscohortCOVID-19dementiaolder peoplequality of life

Identifiers

PMID38275095
PMCPMC10811518
OpenAlexW4391259445

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.