Evidence map›Paper›PMID 38269854›Full record

ArticleMovement disorders clinical practice2024

Discordance between Reports of Internalized Symptoms in Persons with Parkinson's Disease and Informants: Results from an Online Survey.

Rini I Kaplan, Celina Pluim McDowell, Juliana Wall, Shraddha B Kinger, Robert D Salazar, Sandy Neargarder, Alice Cronin-Golomb

Open access · greenAbstract read
In one paragraph

Article in Movement disorders clinical practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
1.1field-weighted citation impact, top 24% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 3 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 1 institution in 1 country.

Rini I KaplanDepartment of Psychological and Brain Sciences, Boston University, Boston, MA, USA.ORCID 0000-0003-3760-7335
Celina Pluim McDowellDepartment of Psychological and Brain Sciences, Boston University, Boston, MA, USA.
Juliana WallDepartment of Psychological and Brain Sciences, Boston University, Boston, MA, USA.
Shraddha B KingerDepartment of Psychological and Brain Sciences, Boston University, Boston, MA, USA.
Robert D SalazarDepartment of Psychological and Brain Sciences, Boston University, Boston, MA, USA.
Sandy NeargarderDepartment of Psychological and Brain Sciences, Boston University, Boston, MA, USA.
Alice Cronin-GolombDepartment of Psychological and Brain Sciences, Boston University, Boston, MA, USA.ORCID 0000-0001-5699-6204
Boston University · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSelf-report of motor and non-motor symptoms is integral to understanding daily challenges of persons with Parkinson's disease (PwPD). Care partners are often asked to serve as informants regarding symptom severity, raising the question of concordance with PwPD self-reports, especially regarding internalized (not outwardly visible) symptoms.

objectivesConcordance between PwPD and informant ratings of motor and non-motor symptoms was evaluated across multiple domains.

methodsIn 60 PwPD-informant pairs, we compared ratings on 11 online self-report measures comprising 33 total scores, 2/3 of which represented purely internalized symptoms. For discordant scores, multiple regression analyses were used to examine demographic/clinical predictors.

resultsThough concordant on 85% of measures, PwPD endorsed more non-motor symptoms, bodily discomfort, stigma, and motor symptoms than informants. For PwPD, younger age, greater disease severity, and female gender predicted discordance.

conclusionsDiscordance between PwPD and informants on measures assessing symptoms that cannot be outwardly observed may require targeted education.

Indexed as

Parkinson DiseaseFemaleHumansSelf Reportcare partnerdiscordancenon‐motor symptomsonlineself‐report

Identifiers

PMID38269854
PMCPMC10982598
OpenAlexW4391224162

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.