ArticleJMIR formative research2024
Culturally Adapting the World Health Organization Digital Intervention for Family Caregivers of People With Dementia (iSupport): Community-Based Participatory Approach.
Article in JMIR formative research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Stakeholders' Perspectives on Implementing the iSupport for Dementia Program to Address Inequalities in Dementia Care: A Qualitative Study.Scandinavian journal of caring sciences · 2026Article
- Cultural Relevance and Acceptability of Cognitive Behavioral Therapy Techniques Adapted by AI or a Human Psychologist: Experimental Study.JMIR formative research · 2026Article
- Usability of iSupport Swiss, a World Health Organization Digital Intervention for Caregivers of People With Dementia: Mixed Methods Study.Journal of medical Internet research · 2026Article
- A Scoping Review of Dementia Research Using ALZConnected Forum Data.Western journal of nursing research · 2026Article
- Providing training and support to Spanish dementia caregivers living in rural and urban areas: insights and results from the iSupport-Sp study.International journal for equity in health · 2026Article
- Quality Appraisal of Telerehabilitation Guidelines: A Systematic Review.International journal of telemedicine and applications · 2026Review
- Unveiling the metaphors of (in)formal care: understanding dementia through language.The Gerontologist · 2025Article
- Media Discourse, Influence, and Reflection: Content Analysis and Text-Mining Study of Suicides and Homicides in Long-Term Care.Journal of medical Internet research · 2025Article
- Transitioning Perspectives in Digital Health Through Phenomenology Integration.Journal of medical Internet research · 2024Article
- Existing Digital Health Technology Index Summary Report for Older Adults Living with Neurocognitive Disorders (Mild and Major) and Their Informal Caregivers: An Environmental Scan.Geriatrics (Basel, Switzerland) · 2024Review
- Adaptation, testing, and use of the "iSupport for Dementia" program in different countries: a systematic review.Dementia & neuropsychologia · 2024Article
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInformal caregivers of people with dementia are at high risk of developing mental and physical distress because of the intensity of the care provided. iSupport is an evidence-based digital program developed by the World Health Organization to provide education and support for the informal everyday care of people living with dementia.
objectiveOur study aims to describe in detail the cultural adaptation process of iSupport in Switzerland. We specifically focused on the participatory strategies we used to design a culturally adapted, Swiss version of iSupport that informed the development of the desktop version, mobile app, and printed manual.
methodsWe used a mixed methods design, with a community-based participatory approach. The adaptation of iSupport followed the World Health Organization adaptation guidelines and was developed in 4 phases: content translation, linguistic and cultural revision by the members of the community advisory board, validation with formal and informal caregivers, and refinement and final adaptation.
resultsThe findings from each phase showed and consolidated the adjustments needed for a culturally adapted, Swiss version of iSupport. We collected feedback and implemented changes related to the following areas: language register and expressions (eg, from "lesson" to "chapter" and from "suffering from" dementia to "affected by" dementia), resources (hyperlinks to local resources for dementia), contents (eg, from general nonfamiliar scenarios to local and verisimilar examples), graphics (eg, from generalized illustrations of objects to human illustrations), and extra features (eg, a glossary, a forum session, and a read-aloud option, as well as a navigation survey).
conclusionsOur study provides evidence on how to culturally adapt a digital program for informal caregivers of people living with dementia. Our results suggest that adopting a community-based participatory approach and collecting lived experiences from the final users and stakeholders is crucial to meet local needs and to inform the further development, testing, and implementation of digital interventions in a specific cultural context.
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