ArticleThe American journal of hospice & palliative care2024
Parkinson's Disease Carepartners' Perceptions of the Challenges and Rewards of Caregiving.
Article in The American journal of hospice & palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Patient autonomy in advance care planning for Parkinson's disease: Systematic review with narrative synthesis.Palliative & supportive care · 2026Pooled it
- Care partner needs in Parkinson's disease: A systematic review of qualitative and quantitative data.Journal of Parkinson's disease · 2025Pooled it
- Priorities to Improve Caregiving Experiences in Parkinson Disease: A Qualitative Study of Multiple Stakeholders.Neurology. Clinical practice · 2026Article
- Reach of Palliative Care in Parkinson Disease: Progress and Gaps After a National Team-Based Implementation Project.Neurology. Clinical practice · 2026Article
- Care Partners' Information Needs When Caring for a Family Member With Parkinson's Disease: An Explorative Study.Scandinavian journal of caring sciences · 2026Article
- Comparing Stakeholders' Perspectives on Parkinson Disease Management and Digital Technologies: Exploratory International Survey.JMIR formative research · 2026Article
- Domains of Caregiving in Parkinson's Disease: A Framework Developed Through Perspective Mapping.The American journal of hospice & palliative care · 2026Article
- Exploratory pilot study of a virtual support group for stroke caregivers.Frontiers in health services · 2026Article
- Spirituality, Spiritual Distress and Experiences of Joy, Meaning and Growth Among Parkinson's Disease Caregivers in the United States.Journal of religion and health · 2025Article
- Parkinson's Disease and Caregiving Roles, Demands, and Support Needs and Experiences: A Scoping Review.Healthcare (Basel, Switzerland) · 2025Article
- Sustaining Joy in Serious Neurologic Illnesses.Seminars in neurology · 2024Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundMultiple debilitating symptoms and the progressive nature of Parkinson's disease (PD) affect carepartners' quality of life. Although, there is abundant knowledge on caregiver burden there is limited knowledge on PD carepartners' perceptions of caregiving.
aimTo understand family members' perception of their role, and of the challenges and rewards of PD caregiving.
methodUsing a qualitative descriptive research design, we conducted semi-structured interviews with current and former PD carepartners
resultsWe identified 5 themes:
conclusionsDespite challenges PD carepartners view their role as "partners" in the management of the disease and find meaning and strength in caregiving. A palliative care approach emphasizing the positives and challenges of caregiving may provide carepartners with better support.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.