Evidence map›Paper›PMID 38262757›Full record

ArticleCanadian family physician Medecin de famille canadien2024

Patient experiences with requests for medical assistance in dying: Perspectives of those with complex chronic conditions.

Clark Fruhstorfer, Michaela Kelly, Laura Spiegel, Peter J Baylis, Justine Dembo, Ellen Wiebe

Abstract read
In one paragraph

Article in Canadian family physician Medecin de famille canadien, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Clark FruhstorferFamily medicine resident at the time of the study based in Penticton, BC.
Michaela KellyMedical student at the University of British Columbia in Vancouver.
Laura SpiegelCounsellor in Vancouver.
Peter J BaylisAdjunct Assistant Professor in the Faculty of Social Work at the University of Calgary in Alberta.
Justine DemboLecturer in the Department of Psychiatry at the University of Toronto in Ontario and a psychiatrist in the Department of Psychiatry at Sunnybrook Research Institute in Toronto.
Ellen WiebeClinical Professor in the Department of Family Practice in the Faculty of Medicine at the University of British Columbia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo explore experiences of patients who have complex chronic conditions (CCCs), such as fibromyalgia and chronic fatigue syndrome, when they request medical assistance in dying (MAID) in Canada.

designQualitative study using semistructured interviews.

settingCanada.

participantsIndividuals with CCCs who had contacted any 1 of 4 advocacy organizations between January 21, 2021, and December 20, 2022, about requesting MAID for suffering related to CCCs or who had applied and been assessed for MAID.

methodsInterviews were conducted virtually (by video or audio) and recordings were transcribed. Thematic analysis was conducted in an iterative manner with abductive analysis. As interviews were completed, transcripts were reviewed and emerging themes were discussed at regular intervals. MAIN

findingsSixteen individuals were interviewed. All spoke of long-lasting suffering that was unresponsive to an array of medical treatments. Although some participants had hoped to receive MAID immediately following the 90-day assessment period, many mentioned that approval would provide or had provided validation of their illness and a sense of control, especially should their illness become unbearable. Participants sharply distinguished between MAID and suicide, saying they preferred MAID because it offered greater certainty and caused less emotional pain to others. Many said that participating in this research was beneficial because they believed the interviewers truly listened to them.

conclusionParticipants described experiences with CCCs and requests for MAID. This information may provide family doctors with new insight to inform interactions with patients with CCCs.

Indexed as

Fatigue Syndrome, ChronicFibromyalgiaChronic DiseaseHumansMedical AssistancePatient Outcome Assessment

Identifiers

PMID38262757
PMCPMC11126284

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.