Evidence map›Paper›PMID 38262681›Full record

ArticleBMJ global health2024

An interpretative phenomenological analysis of the lived experience of people with multimorbidity in low- and middle-income countries.

Phuong Bich Tran, Ayaz Ali, Rubab Ayesha, Jan R Boehnke, Charles Ddungu, Dorothy Lall, Victoria J Pinkney-Atkinson, Josefien van Olmen, COSMOS collaboration

Abstract read
In one paragraph

Article in BMJ global health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Phuong Bich TranDepartment of Family Medicine and Population Health, University of Antwerp, Wilrijk, Belgium phuong.bichtran@outlook.com.ORCID 0000-0003-2119-998X
Ayaz AliInstitute of Psychiatry, Rawalpindi Medical University, Rawalpindi, Pakistan.
Rubab AyeshaInstitute of Psychiatry, Rawalpindi Medical University, Rawalpindi, Pakistan.ORCID 0000-0002-5770-3407
Jan R BoehnkeSchool of Health Sciences, University of Dundee, Dundee, UK.ORCID 0000-0003-0249-1870
Charles DdunguDepartment of Public Health, Institute of Tropical Medicine, Antwerpen, Belgium.
Dorothy LallChristian Medical College and Hospital, Vellore, Tamil Nadu, India.ORCID 0000-0002-2776-2182
Victoria J Pinkney-AtkinsonSouth African Non-Communicable Diseases Alliance (SANCDA), Johannesburg, South Africa.ORCID 0000-0003-1204-4417
Josefien van OlmenDepartment of Family Medicine and Population Health, University of Antwerp, Wilrijk, Belgium.ORCID 0000-0001-9724-1887
COSMOS collaboration

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

People living with multimorbidity (PLWMM) have multiple needs and require long-term personalised care, which necessitates an integrated people-centred approach to healthcare. However, people-centred care may risk being a buzzword in global health and cannot be achieved unless we consider and prioritise the lived experience of the people themselves. This study captures the lived experiences of PLWMM in low- and middle-income countries (LMICs) by exploring their perspectives, experiences, and aspirations.We analysed 50 semi-structured interview responses from 10 LMICs across three regions-South Asia, Latin America, and Western Africa-using an interpretative phenomenological analysis approach.The bodily, social, and system experiences of illness by respondents were multidirectional and interactive, and largely captured the complexity of living with multimorbidity. Despite expensive treatments, many experienced little improvements in their conditions and felt that healthcare was not tailored to their needs. Disease management involved multiple and fragmented healthcare providers with lack of guidance, resulting in repetitive procedures, loss of time, confusion, and frustration. Financial burden was exacerbated by lost productivity and extreme finance coping strategies, creating a vicious cycle. Against the backdrop of uncertainty and disruption due to illness, many demonstrated an ability to cope with their conditions and navigate the healthcare system. Respondents' priorities were reflective of their desire to return to a pre-illness way of life-resuming work, caring for family, and maintaining a sense of independence and normalcy despite illness. Respondents had a wide range of needs that required financial, health education, integrated care, and mental health support.In discussion with respondents on outcomes, it appeared that many have complementary views about what is important and relevant, which may differ from the outcomes established by clinicians and researchers. This knowledge needs to complement and be incorporated into existing research and treatment models to ensure healthcare remains focused on the human and our evolving needs.

Indexed as

Developing CountriesMultimorbidityAfrica, WesternCoping SkillsFinancial StressHumansQualitative study

Identifiers

PMID38262681
PMCPMC10823928

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.