ArticleBMC geriatrics2024
Perpetuating ability to live life as usual: a grounded theory study of persons living with age-related macular degeneration.
Article in BMC geriatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed, 6 citations in OpenAlex.
- Gildeuretinol Acetate versus Placebo for Geographic Atrophy Secondary to Age-Related Macular Degeneration: The Study of ALK-001 in Geographic Atrophy Randomized Clinical Trial.Ophthalmology. Retina · 2026Trial
- Vision impairment and cognitive function in Chinese older adults with diabetes: multiple mediating effects of social participation and perceived control.Frontiers in public health · 2026Article
- Visual functioning in patients with macular degeneration compared to patients with cataracts.International journal of ophthalmology · 2026Article
- Using Virtual Reality to Enhance Mobility, Safety, and Equity for Persons with Vision Loss in Urban Environments.Journal of urban health : bulletin of the New York Academy of Medicine · 2025Article
- Undetected Visual Impairment Among Older People and Its Impact on Vision-Related Quality of Life: A Study Protocol.Nursing reports (Pavia, Italy) · 2025Article
- Acceptance of the Disease in Patients Diagnosed with Neovascular Age-Related Macular Degeneration Depending on Visual Parameters-Before and After a Series of Seven Intravitreal Injections.Journal of clinical medicine · 2025Article
- Comparison of different treatment options in submacular haemorrhage.BMC ophthalmology · 2024Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
Abstract
backgroundAge-Related Macular Degeneration (AMD) is an eye disease associated with age that causes progressive and irreversible loss of central vision, while the peripheral visual ability remains. The occurrence of and especially late AMD is estimated to increase extensively to 2040 among persons aged ≥ 65 in Scandinavia, due to an increasing aging population.
objectivesThe present study explored what it means to live with AMD through the eyes of those living with the condition.
methodsThis is an explorative interview study. People who were ≥ 65 years old, living in their own homes, and diagnosed with advanced dry AMD in one or both eyes, causing a visual acuity of no more than 0.3 or worse in the best eye, were invited to participate in the study. The method chosen was the constructivist grounded theory, where reality is seen as fundamentally social and processual and a way of accessing the participants' experiences, thoughts, and feelings.
resultsIn total, 12 interviews were conducted. Living with dry AMD confronted different problems and challenges. The substantive theory, Perpetuating ability to live life as usual, is characterised by a desire to continue life as usual, which requires an acceptance of the disease's progress, self-acceptance of the new me, and an acceptance that the new life needs to be lived a little more carefully. Moreover, the participants used three strategies to resolve their main concern by maintaining an everyday life 1) Navigating the new normal, 2) Trusting own ability, and 3) Interdepending.
conclusionMaintaining an everyday life is the primary concern among people with AMD. In supporting self-care, gaining information about the subjective experience to support their everyday living is of the utmost importance. This grounded theory captures valuable knowledge of how the older adults resolved their main concern "you got to keep on" despite their affected vision by "facing the fact" live life as usual since since life goes on. Our study also gives rise both to implications for research and practice in order to strengthen older people with AMD facing their future challenges.
trial registrationThe Swedish Ethical Review Authority (EPN 2021/02877).
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