Evidence map›Paper›PMID 38250784›Full record

ArticleJournal of Parkinson's disease2024

Real-World Evaluation of the Feasibility, Acceptability and Safety of a Remote, Self-Management Parkinson's Disease Care Pathway: A Healthcare Improvement Initiative.

Angie A Kehagia, Sarah Chowienczyk, Michelle Helena van Velthoven, Emma King, Tracie North, Deb Shenton, Jane Abraham, Joseph Langley, Rebecca Partridge, Ursula Ankeny and 10 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of Parkinson's disease, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Angie A KehagiaSchool of Biomedical Engineering and Imaging Sciences, King's Technology Evaluation Centre, King's College London, UK.
Sarah ChowienczykUniversity of Plymouth, Plymouth, UK.
Michelle Helena van VelthovenDutches Consulting Ltd, Cambridge, UK.
Emma KingUniversity Hospitals Plymouth NHS Trust, Plymouth, UK.
Tracie NorthFre-est Ltd, Truro, UK.
Deb ShentonUniversity of Plymouth, Plymouth, UK.
Jane AbrahamFlourish Workplace Ltd, Callington, UK.
Joseph LangleySheffield Hallam University, Sheffield, UK.
Rebecca PartridgeSheffield Hallam University, Sheffield, UK.
Ursula AnkenySheffield Hallam University, Sheffield, UK.
Terry GorstSouth West Academic Health Science Network, Exeter, UK.
Emma EdwardsLivewell Southwest, Plymouth, UK.
Sue WhippsExperts by Experience, Devon, UK.
Martha BatupExperts by Experience, Devon, UK.
Jane RideoutExperts by Experience, Devon, UK.
Mat SwabeyUniversity Hospitals Plymouth NHS Trust, Plymouth, UK.
Jemma InchesUniversity Hospitals Plymouth NHS Trust, Plymouth, UK.
Sue BentleyUniversity Hospitals Plymouth NHS Trust, Plymouth, UK.
Georgina GilbertUniversity Hospitals Plymouth NHS Trust, Plymouth, UK.
Camille CarrollUniversity of Plymouth, Plymouth, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThere is significant unmet need for effective and efficiently delivered care for people with Parkinson's disease (PwP). We undertook a service improvement initiative to co-develop and implement a new care pathway, Home Based Care (HBC), based on supported self-management, remote monitoring and the ability to trigger a healthcare contact when needed.

objectiveTo evaluate feasibility, acceptability and safety of Home Based Care.

methodsWe evaluated data from the first 100 patients on HBC for 6 months. Patient monitoring, performed at baseline and 6-monthly, comprised motor (MDS-UPDRS II and accelerometer), non-motor (NMSQ, PDSS-2, HADS) and quality of life (PDQ) measures. Care quality was audited against Parkinson's UK national audit standards. Process measures captured feasibility. Acceptability was assessed using a mixed-methods approach comprising questionnaires and semi-structured interviews.

resultsBetween October 2019 and January 2021, 108 PwP were enrolled onto HBC, with data from 100 being available at 6 months. Over 90% of all questionnaires were returned, 97% were complete or had < 3 missing items. Reporting and communications occurred within agreed timeframes. Compared with baseline, after 6m on HBC, PD symptoms were stable; more PwP felt listened to (90% vs. 79%) and able to seek help (79% vs. 68%). HBC met 93% of national audit criteria. Key themes from the interviews included autonomy and empowerment.

conclusionsWe have demonstrated acceptability, feasibility and safety of our novel remotely delivered Parkinson's care pathway. Ensuring scalability will widen its reach and realize its benefits for underserved communities, enabling formal comparisons with standard care and cost-effectiveness evaluation.

Indexed as

Parkinson DiseaseSelf-ManagementCritical PathwaysDelivery of Health CareFeasibility StudiesHumansQuality of Lifedigital health technologyParkinson’s diseaseremote managementSelf-managementsensor

Identifiers

PMID38250784
PMCPMC10836560

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.