Evidence map›Paper›PMID 38248236›Full record

ArticleBrain sciences2023

Clinical, Sociodemographic, and Psychological Factors Associated with Transition Readiness in Patients with Epilepsy.

Mariacarolina Vacca, Mariana Fernandes, Lorenzo Veronese, Andrea Ballesio, Caterina Cerminara, Cinzia Galasso, Luigi Mazzone, Caterina Lombardo, Nicola Biagio Mercuri, Claudio Liguori

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Brain sciences, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.9field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 2 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 3 institutions in 1 country.

Mariacarolina VaccaDepartment of Psychology, Sapienza University of Rome, 00185 Rome, Italy.
Mariana FernandesDepartment of Systems Medicine, University of Rome Tor Vergata, Montpellier Street 1, 00133 Rome, Italy.ORCID 0000-0002-7005-2805
Lorenzo VeroneseDepartment of Systems Medicine, University of Rome Tor Vergata, Montpellier Street 1, 00133 Rome, Italy.
Andrea BallesioDepartment of Psychology, Sapienza University of Rome, 00185 Rome, Italy.
Caterina CerminaraChild Neurology and Psychiatry Unit, Department of Neurosciences, Policlinico Tor Vergata Hospital, Viale Oxford 81, 00133 Rome, Italy.
Cinzia GalassoDepartment of Systems Medicine, University of Rome Tor Vergata, Montpellier Street 1, 00133 Rome, Italy.
Luigi MazzoneDepartment of Systems Medicine, University of Rome Tor Vergata, Montpellier Street 1, 00133 Rome, Italy.ORCID 0000-0002-5287-3386
Caterina LombardoDepartment of Psychology, Sapienza University of Rome, 00185 Rome, Italy.ORCID 0000-0002-5245-1757
Nicola Biagio MercuriDepartment of Systems Medicine, University of Rome Tor Vergata, Montpellier Street 1, 00133 Rome, Italy.ORCID 0000-0001-6700-7491
Claudio LiguoriDepartment of Systems Medicine, University of Rome Tor Vergata, Montpellier Street 1, 00133 Rome, Italy.
University of Rome Tor Vergata · ITSapienza University of Rome · ITPoliclinico Tor Vergata · IT

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe transition to adult care for patients with epilepsy is a complicated clinical issue associated with adverse outcomes, including non-adherence to treatment, dropout of medical care, and worse prognosis. Moreover, youngsters with epilepsy are notably prone to emotional, psychological, and social difficulties during the transition to adulthood. Transition needs depend on the type of epilepsy and the epileptic syndrome, as well as on the presence of co-morbidities. Having a structured transition program in place is essential to reduce poor health consequences. A key strategy to optimize outcomes involves the use of transition readiness and associated factors assessment to implement the recognition of vulnerability and protective aspects, knowledge, and skills of these patients and their parents. Therefore, this study aims to provide a comprehensive framework of clinical and psychosocial aspects associated with the transition from pediatric to adult medical care of patients with epilepsy.

methodsMeasures examining different aspects of transition readiness and associated clinical, socio-demographic, psychological, and emotional factors were administered to 13 patients with epilepsy (M

resultspatients showed fewer problems in tracking health issues, appointment keeping, and pharmacological adherence as well as low mood symptoms and moderate resiliency. Moreover, they referred to a low quality of sleep. Notably, parents of patients with rare diseases reported a lower quality of sleep as compared to the other group of parents.

conclusionsIncreasing awareness around transition readiness is essential to promote self-management skills of patients with epilepsy and their parents. Anticipating the period of transition could be beneficial, especially to prevent problematic sleep patterns and promote independence in health care management. Parents of patients with epilepsy and rare diseases should be monitored for their mental status which can affect patients' well-being.

Indexed as

epilepsyparentspsychologicaltransition readiness

Identifiers

PMID38248236
PMCPMC10813513
OpenAlexW4390176151

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.