Evidence map›Paper›PMID 38238056›Full record

ArticleBMJ open2024

Cohort profile: Born in Wales-a birth cohort with maternity, parental and child data linkage for life course research in Wales, UK.

Hope Jones, Mike J Seaborne, Natasha L Kennedy, Michaela James, Sam Dredge, Amrita Bandyopadhyay, Adele Battaglia, Sarah Davies, Sinead Brophy

Abstract read
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Hope JonesNational Centre for Population Health and Wellbeing Research, Swansea University Medical School, Swansea, UK H.E.Jones@Swansea.ac.uk.ORCID 0000-0003-4312-476X
Mike J SeaborneNational Centre for Population Health and Wellbeing Research, Swansea University Medical School, Swansea, UK.ORCID 0000-0002-4921-7556
Natasha L KennedyNational Centre for Population Health and Wellbeing Research, Swansea University Medical School, Swansea, UK.
Michaela JamesNational Centre for Population Health and Wellbeing Research, Swansea University Medical School, Swansea, UK.ORCID 0000-0001-7047-0049
Sam DredgeNational Centre for Population Health and Wellbeing Research, Swansea University Medical School, Swansea, UK.
Amrita BandyopadhyayNational Centre for Population Health and Wellbeing Research, Swansea University Medical School, Swansea, UK.ORCID 0000-0003-2798-4030
Adele BattagliaPatient and Public Involvement Representative, Swansea, UK.ORCID 0000-0002-6737-0343
Sarah DaviesBetsi Cadwaladr University Health Board, Bangor, UK.
Sinead BrophyNational Centre for Population Health and Wellbeing Research, Swansea University Medical School, Swansea, UK.ORCID 0000-0001-7417-2858

Funding

Medical Research Council MR/X02055X/1
6 · The paper itself

Abstract

purposeUsing Wales's national dataset for maternity and births as a core dataset, we have linked related datasets to create a more complete and comprehensive entire country birth cohort. Data of anonymised identified persons are linked on the individual level to data from health, social care and education data within the Secure Anonymised Information Linkage (SAIL) Databank. Each individual is assigned an encrypted Anonymised Linking Field; this field is used to link anonymised individuals across datasets. We present the descriptive data available in the core dataset, and the future expansion plans for the database beyond its initial development stage.

participantsDescriptive information from 2011 to 2023 has been gathered from the National Community Child Health Database (NCCHD) in SAIL. This comprehensive dataset comprises over 400 000 child electronic records. Additionally, survey responses about health and well-being from a cross-section of the population including 2500 parents and 30 000 primary school children have been collected for enriched personal responses and linkage to the data spine. FINDINGS TO DATE: The electronic cohort comprises all children born in Wales since 2011, with follow-up conducted until they finish primary school at age 11. The child cohort is 51%: 49% female: male, and 7.8% are from ethnic minority backgrounds. When considering age distribution, 26.8% of children are under the age of 5, while 63.2% fall within the age range of 5-11. FUTURE PLANS: Born in Wales will expand by 30 000 new births annually in Wales (in NCCHD), while including follow-up data of children and parents already in the database. Supplementary datasets complement the existing linkage, including primary care, hospital data, educational attainment and social care. Future research includes exploring the long-term implications of COVID-19 on child health and development, and examining the impact of parental work environment on child health and development.

Indexed as

Birth CohortEthnicityChildFemaleHumansInformation Storage and RetrievalLife Change EventsMaleMinority GroupsParentsPregnancyWalesCommunity child healthEPIDEMIOLOGYPUBLIC HEALTHSurveys and Questionnaires

Identifiers

PMID38238056
PMCPMC10806724

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.