ArticleJournal of intellectual disability research : JIDR2024
Prevalence of intellectual disability among adults born in the 1980s and 1990s in the United States.
Article in Journal of intellectual disability research : JIDR, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed, 6 citations in OpenAlex.
- Comprehensive Psychometric Evaluation of the Child/Adult and Family Quality of Life Scale : Third Edition.Journal of autism and developmental disorders · 2026Article
- Association of neurodevelopmental conditions with Alzheimer's disease and related dementias and Parkinson's disease.The journals of gerontology. Series A, Biological sciences and medical sciences · 2026Article
- Anxiety, Depression, and Care Barriers in Adults With Intellectual and Developmental Disabilities.JAMA network open · 2026Article
- Neurodiversity-Affirming Principles in Oncology Treatment: A Lived-Experience Case Study.Psycho-oncology · 2026Article
- Experimental Pain Research in Individuals with Intellectual Developmental Disorder: A Scoping Review.Journal of pain research · 2026Review
- Challenges in Providing Parenting Support for Parents With Intellectual Disabilities in Japan.Journal of applied research in intellectual disabilities : JARID · 2025Review
- Validation of the Turkish version of the Developmental Behavior Checklist: a comprehensive tool for assessing emotional, behavioral, and autism spectrum disorders in children and adolescents with intellectual disabilities.Frontiers in psychiatry · 2025Article
- Enhancing comfort of resident physicians treating adults with intellectual and developmental disabilities by facilitating meaningful interactions.Frontiers in medicine · 2024Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundPrevalence of intellectual disability (ID) is currently estimated through parent report on surveys of children. It is difficult to estimate the number of adults living with ID in the United States because no comprehensive survey or surveillance allows for identification. The purpose of this study was to estimate the prevalence and number of adults with ID born between 1980 and 1999 using multiple years of the National Health Interview Survey (NHIS) and Census data.
methodsWe concatenated the NHIS from 1997-2016 that evaluated parental response about whether a child aged 3-17 years had an ID. Using weighted survey analyses, we estimated the prevalence of ID among individuals across four birth cohorts-(1) 1980-1984, (2) 1985-1989, (3) 1990-1994, and (4) 1995-1999. The number of adults with ID was then extrapolated by applying these prevalence rates to Census population estimates (as of 1 July 2021) of respective birth cohorts.
resultsWeighted prevalence of ID varied by birth cohort, sex, race and ethnicity, and US Census Bureau regions. The overall prevalence rate was 1.066 [95% confidence interval (CI): 0.831-1.302] for adults born between 1980 and 1984, 0.772 (CI: 0.654-0.891) for adults born between 1985 and 1989, 0.774 (0.675-0.874) for adults born between 1990 and 1994, and 1.069 (CI: 0.898-1.240) for adults born between 1995 and 1999. Overall, we estimate that 818 564 adults with ID who were approximately 21-41 years were living in the United States as of 2021.
conclusionsThis study provides researchers examining adult health outcomes with an estimated denominator of young and middle-aged adults living with ID in the United States. Policymakers can use this information to support justification for resource and service needs, and clinicians may benefit from understanding that ID is a lifelong developmental condition often with additional physical, emotional and developmental needs requiring tailored care.
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