Evidence map›Paper›PMID 38223237›Full record

ArticleEJC paediatric oncology2023

Palliative care services in paediatric oncology centres across Europe: A cross-sectional survey.

Eddy Carolina Pedraza, Peter Francis Raguindin, Manya Jerina Hendriks, Anna Katharina Vokinger, Eva De Clercq, Katja Rüesch, Lars Hjorth, André Oscar von Bueren, Eva Maria Tinner, Eva Bergstraesser and 2 more

Abstract read
In one paragraph

Article in EJC paediatric oncology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Eddy Carolina PedrazaFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Peter Francis RaguindinFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Manya Jerina HendriksFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Anna Katharina VokingerFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Eva De ClercqFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Katja RüeschFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.
Lars HjorthDepartment of Clinical Sciences Lund, Paediatrics, Skane University Hospital, Lund University, Lund, Sweden.
André Oscar von BuerenDepartment of Paediatrics, Obstetrics and Gynaecology Division of Paediatric Haematology and Oncology University Hospital of Geneva, Switzerland.
Eva Maria TinnerPaediatric Haematology/Oncology, Department of Paediatrics, Inselspital, Bern University Hospital, University of Bern, Switzerland.
Eva BergstraesserDepartment of Paediatrics, Paediatric Palliative Care, University Children's Hospital Zurich, University of Zurich, Switzerland.
Lori WienerCenter for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, United States.
Gisela MichelFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.

Funding

Intramural NIH HHS Z99 CA999999
6 · The paper itself

Abstract

Background: Palliative care (PC) is an integral part of cancer treatment. However, data on service availability is limited in childhood cancers. Aim: To describe the availability of PC services in paediatric oncology centres across Europe, and to identify barriers and facilitators for implementing and providing paediatric palliative care (PPC). Methods: Paediatric oncology centres across Europe were invited to complete an online questionnaire. Results: A total of 158 paediatric oncology centres from 27 European countries participated. More than half of the centres (n=102, 64.6%) reported offering specialised PPC (defined as 24/7 coverage services with specialized physician and a multidisciplinary team). Most centres included a multidisciplinary care team (n=123, 80.9%) and PC at home (n=105, 69.1%). In 38.7% centres, service capacity was reported to be lower than demand. In most centres, PC consultation was initiated for a refractory neoplasm (n=126, 81.2%). Few centres (n=11, 7.1%) offered PC consultation at the time of a new cancer diagnosis. Eighty-two centres (52.6%) reported having bereavement services. Negative parental perception (n=99, 64.7%) and late referrals (n=91, 59.5%) were major barriers to implementation perceived by health care providers. Conclusion: Our results suggest that specialised PPC is available in more than half of paediatric oncology settings across Europe. Although half have had PPC available for >10 years, many cannot fulfil the demand for service. Barriers to implementation (i.e., parental education, staff training) should be addressed, with resources and services further expanded to cover the demand for PPC, including bereavement care.

Indexed as

bereavementchildhood cancerhealth servicesIntegrative Oncologypaediatricspalliative carepalliative supportive carepatient careservices

Identifiers

PMID38223237
PMCPMC10785771

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.