ArticleAMIA ... Annual Symposium proceedings. AMIA Symposium2023
Self-Expression and Sharing around Chronic Illness on TikTok.
Article in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
7 citing papers in PubMed.
- Comments on Dermatologists' TikTok Videos on Atopic Dermatitis: Content Analysis.JMIR dermatology · 2026Article
- TikTok as a Platform for Patient Education and Health Information in Rare Genetic Diseases: Cross-Sectional Study.JMIR formative research · 2026Article
- Coping With Chronic Illness: A Systematic Review of Adaptive Strategies Across Cancer, COPD, Diabetes and Heart Disease.Public health challenges · 2025Review
- Generative artificial intelligence and machine learning methods to screen social media content.PeerJ. Computer science · 2025Article
- Precision Prevention: Using Data to Target the Right Intervention at the Right Intensity in the Right Community at the Right Time.Yearbook of medical informatics · 2024Article
- Assessing the Quality and Reliability of Videos Related to Fibromyalgia on TikTok: A Comprehensive Analysis.Cureus · 2024Article
- Healthy Lifestyles and Self-Improvement Videos on YouTube: A Thematic Analysis of Teen-Targeted Social Media Content.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
While prior work has investigated the benefits of online health communities and general-purpose social media used for health-related purposes, little work examines the use of TikTok, an emerging social media platform with a substantial user base. The platform's multimodal capabilities foster creative self-expression, while the content-driven network allows users to reach new audiences beyond their personal connections. To investigate users' challenges and motivations, we analyzed 160 TikTok videos that center on users' firsthand experiences living with chronic illness. We found that users struggled with a loss of normalcy and stigmatization in daily life. To contend with these challenges, they publicly shared their experiences to raise awareness, seek support from peers, and normalize chronic illness experiences. Based on our findings, we discuss the modalities of TikTok that facilitate self-expression around stigmatized topics and provide implications for the design of online health communities that better support adolescents and young adults.
Indexed as
Identifiers
38222376PMC10785898What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.