Evidence map›Paper›PMID 38215896›Full record

ArticleJournal of pain and symptom management2024

Outcomes and Experiences of Patients and Their Caregivers After Severe Stroke Requiring Tube Feeding in Peru.

Nauzley C Abedini, Orli M Shulein, Sandra Berrú-Villalobos, Jorge Ramírez-Quiñones, Claire J Creutzfeldt, Jill Portocarrero, Joseph R Zunt, Carlos Abanto-Argomedo

Open access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pain and symptom management, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
0.5field-weighted citation impact, top 34% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it, 2 citations in OpenAlex.

  1. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 2 countries.

Nauzley C AbediniDepartment of Medicine (N.C.A.), University of Washington, Seattle, Washington, USA; Cambia Palliative Care Center of Excellence at UW Medicine (N.C.A., C.J.C.), Seattle, Washington, USA.
Orli M ShuleinDepartment of Rehabilitation (O.M.S.), University of Washington, Seattle, Washington, USA.
Sandra Berrú-VillalobosInstituto Nacional de Ciencias Neurológias (S.B.-V., J.R.-Q., C.A.-A.), Lima, Peru.
Jorge Ramírez-QuiñonesInstituto Nacional de Ciencias Neurológias (S.B.-V., J.R.-Q., C.A.-A.), Lima, Peru.
Claire J CreutzfeldtCambia Palliative Care Center of Excellence at UW Medicine (N.C.A., C.J.C.), Seattle, Washington, USA; Department of Neurology (C.J.C.), University of Washington, Seattle, Washington, USA. Electronic address: clairejc@uw.edu.
Jill PortocarreroCRONICAS Center of Excellence in Chronic Diseases (J.P.), Universidad Peruana Cayetano Heredia, Lima, Peru.
Joseph R ZuntDepartments of Neurology and Global Health (J.R.Z.), University of Washington, Seattle, Washington, USA.
Carlos Abanto-ArgomedoInstituto Nacional de Ciencias Neurológias (S.B.-V., J.R.-Q., C.A.-A.), Lima, Peru.
University of Washington · USInstituto Nacional de Ciencias NeurológicasUniversidad Peruana Cayetano Heredia · PE

Funding

Interdisciplinary Cerebrovascular Diseases Training Program in South AmericaD43TW009137 · FIC · UNIVERSITY OF WASHINGTON · PI GARCIA, HECTOR HUGO, TIRSCHWELL, DAVID L · 2014 to 2023
$2.6M
FIC NIH HHS D43 TW009137
6 · The paper itself

Abstract

objectivesEvaluate clinical outcomes of stroke survivors in Peru discharged with artificial nutrition via a feeding tube (FT), and explore perspectives and experiences of these patients and their caregivers.

methodsRetrospective chart review to describe the prevalence of FT placement and characteristics of patients admitted with stroke to the Instituto Nacional de Ciencias Neurológicas in Lima, Peru between January 2019 and 2021. Follow-up calls to stroke survivors discharged home with FTs or their caregivers included quantitative and qualitative questions to assess long-term outcome and explore perspectives around poststroke care and FT management. We analyzed quantitative data descriptively and applied thematic analysis to qualitative data using a consensus-driven codebook.

resultsOf 812 hospitalized patients with stroke, 146 (18%) were discharged home with FT, all with nasogastric tubes (NGTs). Follow-up calls were performed a median of 18 months after stroke with 96 caregivers and three patients. Twenty-five patients (25%) had died, and 82% of survivors (n = 61) remained dependent for some care. Four themes emerged from interviews: (1) perceived suffering (physical, emotional, existential) associated with the NGT and stroke-related disability, often exacerbated by lack of preparedness or prognostic awareness; (2) concerns around compromised personhood and value-discordant care; (3) coping with their loved-one's illness and the caregiving role; and (4) barriers to NGT care and skill acquisition.

conclusionWe identified a high burden of palliative and supportive needs among severe stroke survivors with NGTs and their caregivers suggesting opportunities to improve poststroke care through education, communication, and support.

Indexed as

CaregiversStrokeEnteral NutritionHumansPeruRetrospective Studiesartificial nutritioncaregiver burdencommunicationStroke

Identifiers

PMID38215896
PMCPMC12976966
OpenAlexW4390747577

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.