ArticleInternational journal of qualitative studies on health and well-being2024
Family caregiver experiences and needs across health conditions, relationships, and the lifespan: a Qualitative analysis.
Article in International journal of qualitative studies on health and well-being, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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The trial behind it
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Who cites it
11 citing papers in PubMed.
- Identifying and Mapping Levels of Active Engagement Within an Arts-Based Intervention: A Qualitative Analysis and Conceptual Development.International journal of behavioral medicine · 2026Article
- Embedding Lived Expertise into Military and Veteran Medical Research.Military medicine · 2026Article
- Experiences and challenges of caregivers of children with cerebral palsy in Magba subdivision, Cameroon: a qualitative analysis.BMC neurology · 2026Article
- The Family Caregiver Role From the Perspective of Older Women Experiencing Poverty in a High-Income Country: A Qualitative Study.Journal of advanced nursing · 2026Article
- The Value of Implicitness: An Empirical Ethics Analysis of Indonesian Everyday Family Involvement in a Palliative Care Setting.Asian bioethics review · 2026Article
- Packing for the journey: translating practice development into the digital realm.Frontiers in health services · 2026Article
- A Qualitative Study of Health-Related Experiences Associated with Lifestyle Role Transitions Among Local Residents in Their 60s.Healthcare (Basel, Switzerland) · 2025Article
- The Lived Experiences of Family Caregivers in Caring for Older Adults at Risk of Falls: A Phenomenological Study.International journal of community based nursing and midwifery · 2025Article
- Health of the Pandemic Dementia Paid Staff and Unpaid Caregiver Workforce in Congregate Care and Community Settings.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2025Article
- Perceived helpfulness of caregiver support resources: Results from a state-wide poll.PEC innovation · 2024Article
- Family-Centered Care Experiences in Elderly with Chronic Diseases in Communities: Qualitative Study of Patients, Families, Nurses, and Volunteers.Health equity · 2024Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
purposeThe purpose of this study was to understand the lived experiences of family caregivers who provide care to individuals across a broad range of ages, caregiving relationships, and health conditions and/or disabilities. Family caregiver research is typically siloed by health condition or by caregiving relationship, leaving gaps in understanding similarities and differences among caregivers.
methodsWe hosted three virtual focus groups with diverse family caregivers (
resultsParticipants primarily expressed shared experiences, despite having unique caregiving situations. We identified themes among a) caregiver experiences: Trying to Do It All, Balancing Complex Emotions, Managing Expectations, and Adjusting to Changes Over Time and b) caregiver needs: Longing for Breaks and Self-Care; Lacking Help, Support and Resources; and Desiring Understanding and Recognition.
conclusionsThese findings emphasize that many elements of the caregiving experience transcend care recipient age, condition, and relationship and are applicable to clinicians, researchers, and policy makers. The evidence of shared caregiver experiences can guide efficiencies in policy and practice (e.g., pooling of existing resources, expansion of interventions) to meet the needs of a broader population of caregivers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.