ArticleBMC palliative care2024
Family caregivers' preferences for support when caring for a family member with cancer in late palliative phase who wish to die at home - a grounded theory study.
Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
31 citing papers in PubMed, 3 syntheses or guidelines pooled it, 41 citations in OpenAlex.
- Meta-synthesis of qualitative research on comfort experiences of family caregivers in hospice care: a systematic review.Frontiers in public health · 2026Pooled it
- Caring for the Informal Caregivers: Systematic Review of Unmet Needs in Palliative Care.Nursing open · 2025Pooled it
- Decision-making factors related to palliative care and hospice use in the community: a systematic review based on Andersen's behavioural model of health services use.BMC palliative care · 2025Pooled it
- Web-Based Psychoeducational Intervention to Improve Family Caregiver Preparedness in Specialized Palliative Home Care: A Randomized Controlled Trial.Psycho-oncology · 2025Trial
- Dyadic relationship experience in Chinese patients with advanced cancer and their spouses: A longitudinal qualitative study.Asia-Pacific journal of oncology nursing · 2026Article
- Scoping review on navigation interventions for older adults with cancer in Europe and beyond.European geriatric medicine · 2026Review
- Acceptability of My Ten: a physical activity intervention for family caregivers of people with advanced cancer.BMC palliative care · 2026Article
- Psychosocial Burden and Supportive Care Needs of Informal Caregivers in Specialist Palliative Care: Protocol of a Multicenter Longitudinal Cohort Study to Identify Trajectories and Validate the Multidimensional Screening Tool CAREPAL-8.JMIR research protocols · 2026Article
- "Straddling two worlds": complexities of spousal caregiving in amyotrophic lateral sclerosis during younger middle age.BMC palliative care · 2026Article
- The family caregiver experience in palliative care pathways: a multidimensional framework.BMC health services research · 2026Article
- Caregiving needs of patients with terminal cancer and their families: a field study of family meetings.BMC palliative care · 2026Article
- Mapping Existing Informal Home Caregiver Support Guidelines for Palliative Care: A Scoping Review.Rwanda journal of medicine and health sciences · 2026Review
- Standing next to but not being part of: relatives' experiences of support from healthcare professionals when general palliative care is provided at home.BMC palliative care · 2026Article
- A caring safety net or a broken shelter-Relatives' experiences of specialized palliative home care: A national registry study.Palliative care and social practice · 2026Article
- From the hospital to the community: reshaping the palliative care paradigm.Frontiers in public health · 2026Article
- Choice, struggle, and resilience: the experience of pre-loss grief among Chinese family caregivers of cancer patients.BMC palliative care · 2025Article
- Palliative care conditions managed at home and self-reported challenges experienced by informal home-based caregivers in Rwanda: a qualitative study.BMC palliative care · 2025Article
- Factors that support home deaths for patients receiving at-home palliative and end-of-life care: a sequential mixed-methods explanatory study.BMC palliative care · 2025Article
- A qualitative exploration of cAregiver experienCes Of conseRvatively maNaged kidney failure: the ACORN study.BMC nephrology · 2025Article
- Factors Affecting Quality of Life of Caregivers of Patients with Heart Failure.Healthcare (Basel, Switzerland) · 2025Article
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily caregivers are essential in end-of-life care for cancer patients who wish to die at home. The knowledge is still limited regarding family caregivers needs and preferences for support and whether the preferences change during the patient's illness trajectory. Therefore, the aim was to explore family caregivers' preferences for support from home care services over time when caring for a family member with cancer at the end of life who wished to die at home.
methodsA qualitative method was applied according to Grounded Theory. Data was collected longitudinally over the illness trajectory by means of repeated individual interviews (n = 22) with adult family caregivers (n = 11). Sampling, data collection and data analysis were undertaken simultaneously in line with the constant comparative method.
resultsThe findings are captured in the core category "hold out in duty and love". The categories "having control and readiness for action" and "being involved in care" describe the family caregivers' preferences for being prepared and able to handle procedures, medical treatment and care, and to be involved by the healthcare personnel in the patient's care and decision making. The categories "being seen and confirmed" and "having a respite" describe family caregivers' preferences for support according to their own needs to be able to persevere in the situation.
conclusionDespite deterioration in the patient's illness and the increasing responsibility family caregiver struggle to hold out and focus on being in the present. Over time together with deterioration in the patient's illness and changes in the situation, they expressed a need for more intense and extensive support from the home care services. To meet the family caregivers' preferences for support a systematic implementation of a person-centred care model and multicomponent psycho- educational interventions performed by nurses can be proposed. Moreover, we suggest developing a tool based on the conceptual model generated in this study to identify and map family caregivers' needs and preferences for support. Such a tool can facilitate communication and ensure person-centred interventions.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.