Evidence map›Paper›PMID 38207270›Full record

ArticleAmerican journal of public health2024

Democratizing Native Hawaiian and Pacific Islander Data: Examining Community Accessibility of Data for Health and the Social Drivers of Health.

Brittany N Morey, Corina S Penaia, 'Alisi Tulua, Richard C Chang, Roselyn Tanghal, Jacqueline H Tran, Ninez A Ponce

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in American journal of public health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Brittany N MoreyBrittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. 'Alisi Tulua, is with Asian American Futures, Irvine, CA.
Corina S PenaiaBrittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. 'Alisi Tulua, is with Asian American Futures, Irvine, CA.
'Alisi TuluaBrittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. 'Alisi Tulua, is with Asian American Futures, Irvine, CA.
Richard C ChangBrittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. 'Alisi Tulua, is with Asian American Futures, Irvine, CA.
Roselyn TanghalBrittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. 'Alisi Tulua, is with Asian American Futures, Irvine, CA.
Jacqueline H TranBrittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. 'Alisi Tulua, is with Asian American Futures, Irvine, CA.
Ninez A PonceBrittany N. Morey and Roselyn Tanghal are with University of California-Irvine, Department of Health, Society, and Behavior, Irvine, CA. Corina S. Penaia, Richard C. Chang, and Ninez A. Ponce are with Native Hawaiian and Pacific Islander (NHPI) Data Policy Lab, UCLA Center for Health Policy Research, Los Angeles, CA. Jacqueline H. Tran is with Jacqueline Tran Consulting, Irvine, CA. 'Alisi Tulua, is with Asian American Futures, Irvine, CA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Making data accessible to communities is essential for developing community-driven solutions to address health inequities. In this analytic essay, we highlight the importance of democratizing data for Native Hawaiians and Pacific Islanders (NHPIs)-diverse populations that historically have had little access to their data-in the context of achieving equity in health and the social drivers of health. We provide a framework for evaluating community accessibility of data, which includes concepts of data availability, salience, cost, and report back. We apply the framework to evaluate community accessibility of NHPI data from 29 federal data sources. In addition, we provide results from a survey of NHPI-serving community organizations in California conducted from December 2021 to February 2022 to assess community data needs. Findings reveal federal gaps in data accessibility, as well as NHPI community organizational needs for increased data accessibility, data saliency, and technical capacity. Furthermore, organization leads expressed concerns about data privacy, security, and misuse. We provide recommendations for data custodians to improve accessibility of timely, accurate, and robust data to support NHPI communities. (

Indexed as

Health Status DisparitiesNative Hawaiian or Pacific IslanderHealth InequitiesHumans

Identifiers

PMID38207270
PMCPMC10785184

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.