ArticleHealthcare (Basel, Switzerland)2024
Social Media, Endometriosis, and Evidence-Based Information: An Analysis of Instagram Content.
Article in Healthcare (Basel, Switzerland), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 27 citations in OpenAlex.
- Social Media Health Information Formats and Endometriosis Treatment-Seeking Intentions: A Randomized Controlled Trial.Medical decision making : an international journal of the Society for Medical Decision Making · 2026Trial
- Trial
- Exploring women's experiences of informational support provided by gynaecologists in endometriosis care: a qualitative study.BMJ open · 2026Article
- Interpretations of Menstrual Blood Appearance and Diagnostic Potential Among Social Media Users: Cross-Sectional Mixed Methods Social Media Listening Study.Journal of medical Internet research · 2026Article
- GPs' perspectives on patients presenting with endometriosis symptoms: an interview study.BJGP open · 2026Article
- Information Needs of Women Affected by Endometriosis and Their Environment: Qualitative Results from Participatory Workshops.Healthcare (Basel, Switzerland) · 2026Article
- Barriers and Facilitators Affecting the Care of Patients with Endometriosis: A Scoping Review.Geburtshilfe und Frauenheilkunde · 2026Article
- Preoperative imaging for endometriosis awareness: an online survey study.Frontiers in reproductive health · 2026Article
- Article
- How Women with Endometriosis Use Social Media for Support and Self-Management: An Analysis of Reddit Content.International journal of environmental research and public health · 2025Article
- Exploring the Nutrition-Related Healthcare Experiences of Individuals With Endometriosis: Qualitative Interviews With Consumers and Dietitians.Journal of human nutrition and dietetics : the official journal of the British Dietetic Association · 2025Article
- Assessment of Endometriosis Knowledge and Its Determinants Among Nurses in Al-Jouf Region, Saudi Arabia.Healthcare (Basel, Switzerland) · 2025Article
- Endo Belly: A Mixed Methods Exploration of Body Image, Disordered Eating, and Psychopathology in Endometriosis.Journal of clinical psychology · 2025Article
- 'My patients are "gunning for a fight" that I don't want': reflecting on feeling dismissed and conflict- expectant consultations.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Article
- Endometriosis in Adolescence: A Narrative Review of the Psychological and Clinical Implications.Diagnostics (Basel, Switzerland) · 2025Review
- Informational support for women with endometriosis: a scoping review.BMC women's health · 2025Article
- Article
- Low Diet Quality and Nutritional Knowledge in Women with Endometriosis: A Pilot Study.Healthcare (Basel, Switzerland) · 2024Article
- Article
- Patient experience surveys for endometriosis care: A scoping review.Women's health (London, England)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors at 8 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Social media platforms are used for support and as resources by people from the endometriosis community who are seeking advice about diagnosis, education, and disease management. However, little is known about the scientific accuracy of information circulated on Instagram about the disease. To fill this gap, this study analysed the evidence-based nature of content on Instagram about endometriosis. A total of 515 Instagram posts published between February 2022 and April 2022 were gathered and analysed using a content analysis method, resulting in sixteen main content categories, including "educational", which comprised eleven subcategories. Claims within educational posts were further analysed for their evidence-based accuracy, guided by a process which included fact-checking all claims against the current scientific evidence and research. Of the eleven educational subcategories, only four categories (cure, scientific article, symptoms, and fertility) comprised claims that were at least 50% or greater evidence-based. More commonly, claims comprised varying degrees of evidence-based, mixed, and non-evidence-based information, and some categories, such as surgery, were dominated by non-evidence-based information about the disease. This is concerning as social media can impact real-life decision-making and management for individuals with endometriosis. Therefore, this study suggests that health communicators, clinicians, scientists, educators, and community groups trying to engage with the endometriosis online community need to be aware of social media discourses about endometriosis, while also ensuring that accurate and translatable information is provided.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.