ArticleHealthcare (Basel, Switzerland)2023
Medical Gaslighting and Lyme Disease: The Patient Experience.
Article in Healthcare (Basel, Switzerland), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- What do we know about medical invalidation and related concepts? - A scoping review and thematic analysis about the definitions, measurements, causes, consequences and potential solutions for medical invalidation.BMC health services research · 2026Article
- Reframing Patient and Parental Experience in Pediatric Healthcare: Medical Gaslighting as a Diagnostic Safety Vulnerability.Children (Basel, Switzerland) · 2026Review
- Article
- Promoting a Positive Relationship Between Physicians and Patients with Lyme Disease During Pregnancy and Parenthood.Pathogens (Basel, Switzerland) · 2026Article
- An Overview of Severe Myalgic Encephalomyelitis.Journal of clinical medicine · 2026Review
- Medical gaslighting as a threat to beneficence and patient autonomy: a qualitative study.BMC medical ethics · 2025Article
- Autoethnographic Insights from Neurodivergent GAI "Power Users".Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2025Article
- Case Report: The intersection of psychiatry and medicine: diagnostic and ethical insights from case studies.Frontiers in psychiatry · 2025Article
- Defining a core outcome set for hypermobility spectrum disorders and hypermobile Ehlers-Danlos syndrome: A Delphi consensus study.Clinical rheumatology · 2024Article
- Biomarker-Based Analysis of Pain in Patients with Tick-Borne Infections before and after Antibiotic Treatment.Antibiotics (Basel, Switzerland) · 2024Article
- "I have to fight for them to investigate things": a qualitative exploration of physical and mental healthcare for women diagnosed with mental illness.Frontiers in public health · 2024Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Even though there are approximately half a million new cases of Lyme disease in the US annually, according to the CDC, it is often undiagnosed or misdiagnosed, which can result in a chronic, multisystemic condition. Lyme disease is a recognized public health threat and is a designated "notifiable disease". As such, Lyme disease is mandated to be reported by the CDC. Despite this, both acute and chronic Lyme disease (CLD) have been relegated to the category of "contested illnesses", which can lead to medical gaslighting. By analyzing results from an online survey of respondents with Lyme disease (n = 986), we elucidate the lived experiences of people who have been pushed to the margins of the medical system by having their symptoms attributed to mental illness, anxiety, stress, and aging. Further, respondents have had their blood tests and erythema migrans (EM) rashes discounted and were told that CLD simply does not exist. As a result, a series of fruitless consultations often result in the delay of a correct diagnosis, which has deleterious consequences. This is the first study that addresses an extensive range of gaslighting techniques experienced by this patient population.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.